| Joined: May 2011 Posts: 62 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2011 Posts: 62 | Hi Dave, Anne, Cheryl, Jennifer,
Thanks for the words of encouragement. I go for my PET scan tomorrow and hope that there is nothing else. Appreciate all your positive vibes.
Best Regards, Chetan
Chetan SCC, lateral tongue, age 53, Tongue resection & neck dissection 5/6/11; T1N2BM0, RTX (35 sessions starting 6/8/11)/chemo (3x starting 6/10/11) Last cisplatin 7/22. RTX complete 7/27. PEG in 6/9/11, out 8/31/11
| | | | Joined: May 2011 Posts: 62 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2011 Posts: 62 | Hi,
Just a quick update. I got the results of the PET scan and there are two additional LN in the areas of radiation that light up. It does not show any metastatis. Phew. Radiation scheduled for next week, but still trying to schedule an appointment with MO for chemo. RO said that first chemo can be a few days after rads starts.
Thanks for all your positive thoughts.
Best Regards, Chetan
Chetan SCC, lateral tongue, age 53, Tongue resection & neck dissection 5/6/11; T1N2BM0, RTX (35 sessions starting 6/8/11)/chemo (3x starting 6/10/11) Last cisplatin 7/22. RTX complete 7/27. PEG in 6/9/11, out 8/31/11
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Awesome - not on the extra nodes - but that there's no distant spread!!! You will get through this!!! and yes chemo can start after rads. I started my rads on a Friday and had my chemo the following Tuesday. Not a big deal. Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2010 Posts: 153 "OCF Canuck, across the pond" Senior Member (100+ posts) | "OCF Canuck, across the pond" Senior Member (100+ posts) Joined: Jun 2010 Posts: 153 | Lots and lots of good advice and info in this thread! You've done the right thing, and unfortunately have had a not great finding, but as has been said, you've caught it early and that's really the best you can hope for sometimes.
It's a fight. My RO described "two months of hell for a good return" and I would say that in my case that was optimistic, but everyone is different. I had bad mental reactions to something, one or more of the multitude of drugs/chemo? overall physical trauma? just how I'm wired? all of it? may never know, but it took some incredibly brave people around me to get me through it. Not meaning to scare anybody, and many people sail through with just the basic physical challenges.
It took me most of a year to truly feel good again, but now, 13 months from end of primary treatment, I can say I really do feel good! I can also say I feel more "normal" than I ever thought I would. No, I'm not the same as before, but I'm closer than I though I would get, and they say it can take two years to really know what the new normal will be, so I may improve yet more.
It was really hard, but I'm very glad I did it, and very grateful for all the help, professional and personal, I had along the way. Marshal your crew! And if you don't have a crew, ask for professional support. Get this lined up, 'cause if you need it, you may not have the capacity or energy to find it. My darkest days were shortly *after* my treatment ended, for what that's worth.
Good luck.
-Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014. Sadly has passed away, notified Jan 2015.
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