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| | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) |  "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I have never liked hearing that the patient had to make a choice about treatment.
I have experienced it for myself and parents with their issues. My immediate reaction is to say that you are the professional and this is your field of expertise...not mine!
Guess I have come to realise that in some circumstances it is not always black or white for the professionals.
Sadly I think you will have to decide the do you or don�t you. As Wayne says you have to weight up the positive and negatives.
You have so many people that love you here and we are all willing you to make the right choice.
Much love and hugs {{{{{Jim}}}}}
Gabriele xxx
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Jim,
Hard choice, I know. But I hope you also know that whatever you choose, we will support it 100%. You're a good man and you have always looked out for yourself, so whatever you chose will be the best for you.
I'll say a special prayer for you tonight.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I am still in the thinking about it stage. Ther are so many things that are a possibilty. One of the main ones is. Will this let the Barretts turn into Esophageal Cancer and if so, is it worth it. To this I would say forget it and go on as is. What will I be able to do for myself as I want to have a garden, keep my yard mowed, painting to do inside? I know this sounds trivial but to me I want a life not just to exist. Since day 1 about 4 years ago, I have done all of those things and much more. If it's possible for me to dig, mow, clean house, shine my car and really just about everything that needa attention, then I will go for it. I just can't sit but must be busy and usefull. It is in my system to be this way. I bet there are a lot of us that say it can wait but in a few minutes are taking charge and hard at it. Just airing it out and thanks for listening. Old Gotta do it. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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