#55836 02-26-2007 06:23 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | I too have terrible, disabling tinnitus, likely from the Cisplatinum. Am feeling desparate and afraid. The annoyance is unbearable and I don't know how long I can tolerate it! It seems to be just getting worse and my hearing is getting terrible. Don't know what to do, but looks fairly hopeless from the information out there on the internet. Any other information or hope? PS: Have had millions of other "side effects" and things pop up but they are seem to eventually disappear  Guess i was hoping this would have too... I have neglected to be active on this board for a number of reasons, so my appologies to anyone I haven't kept in touch with. I'll update on the correct forum.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#55837 02-28-2007 01:02 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | I too will chime in with the rest of you.
Lost high side of hearing, have the ringing. There are times it is not so noticeable.
Have trouble hearing in large room with others. Talked to Dr. about hearing aid. It would only magnify back ground noise. Which that is what makes it hard to hear.
Never new about the ear wax problem. Thanks for that informtion.
Take care
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Jun 2010 Posts: 153 "OCF Canuck, across the pond" Senior Member (100+ posts) | | "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | Hi, we know that certain chemo therapies such as Cisplatin can cause nerve damage, including peripheral neuropathy and tinnitus (ringing in the ears). My father developed tinnitus for unrelated reasons several years ago and achieved relief with the loan of very expensive European "noise generators". However, I suspect that a simple white noise generator might achieve similar benefits, and it turns out that there are all kinds of free or inexpensive "white noise generators" available for iPhone/iPad/iPod etc., such as this one: http://itunes.apple.com/us/app/white-noise-box/id406810651?mt=8I find the app to be well made. I can't say for certain it would help, but anyone suffering from tinnitus would be foolish to not give it a try? I'm just shy of one year out from my treatment and initially was given a clear bill of health when it came to Cisplatin side-effects, but later developed some neuropathy in my feet, and now I'm starting to wonder if I'm hearing high-pitched ringing in my ears. Who knows, I may need this myself in time. Beware possible late-onset side-effects of chemo. -Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
| | | | | Joined: Jun 2010 Posts: 153 "OCF Canuck, across the pond" Senior Member (100+ posts) | | "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | Well look at this, here's a web based white noise generator: http://www.simplynoise.com/Anybody suffering from tinnitus might benefit from white noise therapy, or at least it might provide temporary "masking" relief. Please let us know! -Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
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