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Susan2992 #127120 01-02-2011 01:05 PM
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I have asked about the water and dry mouth. We are absolutely not allowed to take anything we were not born with in the chamber. I will be taking my pain meds 30 minutes before I go in and my magic mouthwash right before I go in. I guess every place is different.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #127136 01-02-2011 07:36 PM
Joined: Jan 2009
Posts: 1,844
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Wow, that facility sucks. Mine was a blast really, in fact I made some really great friends in the Dr's, nurses and Techs that did my treatments.

I got to have juice or water in plastic bottles. Nothing to eat though due to the choking hazard...basically I showed up, got some juice, popped my pain meds (before I went in) and started watching tv or movies. I would have awesome conversations with the tech, we still facebook to this day while watching tv. I would use it to sleep too sometimes depending on how exhausted I was.

The only time it sucked was when my fentanyl patch ran dry and I started going through withdrawels in the tube. I was a big bag of addiction when I finally got out of there lol.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #127139 01-02-2011 08:45 PM
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Posts: 1,412
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Remmber, I live in a small town, and this facility is very very strict. I will be able to watch TV, take my pain meds right beofer I go in, but they are really, really concerned about fire hazards. I really like everyone there, and I do not have any other facility near me to go to. I am lucky that they have one in Tulsa, OK at all.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #127176 01-03-2011 05:14 PM
Joined: Jun 2007
Posts: 5,260
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Posts: 5,260
I have no idea why you aren't allowed water. I was told to take a plastic bottle with the label removed. For the few days I was in it, I always had a bottle of water. Just nothing that a spark could ignite such as even after shave or deodorant as they ontain alchohol. Another thing was socks. just all cotton was allowed.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #127177 01-03-2011 05:15 PM
Joined: Jun 2007
Posts: 5,260
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Forgot that Like Eric I could watch TV in there and sure did talk to the tech a lot.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #127188 01-03-2011 08:04 PM
Joined: May 2009
Posts: 1,412
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I will get to watch TV and be able to talk with the techs as well. Not sure whay not plastic water bottle. I will ask again tomorrow.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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