| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Angelia, ask your ENT about putting tubes in your ears prior to starting HBO. Ive heard of some HBO facilities not taking people til they have the tubes.
I see your signature says HBO on 1/4/11. Is this for a consult or are you starting then? How many dives does your doc want you to do? Ive done 125 over the course of 3 different sessions. It will help heal you. Try to forget about the "what if's". There is always minor surgery to attempt to cover the open area. Your body must heal this wound from the inside out or there would be an open pocket left. Ive walked around with an open spot for almost a year without a problem and that was with doing HBO. It has since been closed by my last surgery. So, you see, nothing to worry about!!! you are cancer free which is the most important thing.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2006 Posts: 388 | Angelia, hoping this treatment will take you off my "re-dial" list for prayers! Get well soon, young lady!
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I am doing 30 dives, and if the bone is still showing I will have some of that removed and then 10 more dives. I need some movie ideas, cause I do not think I have 30 movies I want to watch that are PG-13 and under. I was told I could bring my own DVD's but they can not be rated higher than PG-13.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | It get very boring inside that tube. It sounds kinda liek a fan is running so most of the times I went, I would fall asleep. Maybe thats why I felt so good when I had HBO. I got enough rest for a change. Im sure a nap would do you alot of good. When I went, I ended up getting sucked into the Sopranos. I would watch it every day. Im sure you will find something on tv to watch to break up the monotony of movies.
How about getting tube put in your ears? If they didnt discuss this with you, then I would be concerned about where you are going to go for treatment. I did alright for a while but some days I couldnt dive cuz the pressure hurt my ears. Its very important to let them know if you feel any discomfort. You do not want a ruptured ear drum.
Have you already gone to tour the facility? There are alot of dos and donts to getting HBO. No makeup, perfume, hair get, hair spray, baby powder, nail polish....basically no girly stuff. My nurse would tell me if you werent born with it then you cant take it in the tube.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Yes, I have seen the facility, and have been told if you were not born with it, it doesn't go in. We have discusse tubes and the Dr. did tell me that there are some patients who end up needing them and others that have no problems. While I was getting my "education" a man came in who had not been there for at least a week, because he had to get tubes in his ears. One thing they kept asking is if I ever have problems with airplanes. I never really had too many problems with them. The Dr. told me she wanted to go ahead and get some oxygen going on the wound as it has not healed at all in the last ten days. She said if my ears give me problems after a few times we will then talk to my ENT about getting tubes. I so appreciate all your information. I just hope this covers up that bone. I have so many questions and concerns my head is spinning. This DR. is the only one who said anything about the bone being exposed, but she is a wound specialist. Christine, you are an amzing woman and so strong. I admire your strength and look up to you for that.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | One thing that is funny about HBO. The oxygen doesnt need to be on the wound to heal it. So you dont have to lie there with your mouth open Oh yeah, make sure you take a clear plastic water bottle. It gets very dry in there. You may also need to take a few sips of water to help clear your ears while going 'down'. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Angelia,
I did 45 dives without getting tubes. I did have some problems with my ears at first, but after I got the breathing technique down while �diving� I was fine. The facility should train you on that before you take your first dive. They also suggested using a nasal spray like Afrin one hour before treatment � check with your doctor first.
Unlike Christine I could not sleep while in the chamber, so I brought my own DVDs. I watched the whole Sopranos series (not sure if that would qualify as PG-13 though), plus some other TV shows I got from the video store. It definitely helped with the boredom.
I sure hope the HBO therapy helps you.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I am not allowed to have a water bottle in the chamber with me.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive been treated at 2 different HBO locations and both places allow a clear plastic water bottle. I only have to take the label off. You might want to ask about this.
Susan, thats where I got hooked on the Sopranos (LOL). I would watch it on tv everyday. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | I was also treated at two different hospitals (not the same two that Christine was treated at), and both provided me with a water bottle to take in with me. I felt that the swallowing while sipping water during the "dive" help with the ear pressure.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
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