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| | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | So sorry you are going through this. The speech path at my school has become my best friend and helping me out with certain sounds after mt partial glossectomy. She does tell me I do not sound bad, but I sure do notice it. I am a special ed. teacher so I work closely with speech paths. I have to say don't you just love the paperwork?
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2010 Posts: 87 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2010 Posts: 87 | Jennifer,
Welcome! I'm a nurse myself, and I can definitely relate to your feelings related from switching from the caregiver role to the patient role!!
I am just curious-- if you don't mind sharing, how did you go from a clear PET scan in Sept. to node dissection in November?
I started IMRT the Monday before Thanksgiving-- the good thing about that is I still had some tastebuds for Thanksgiving! I tell my friends I am having radiation spa treatments-- 8 down, 25 to go!
Good luck to you!
Susan
Age 51, married with four kids age 11-18, 9/1/2010, Bx: high grade mucoepidermoid CA left sublingual gland.
10/8/2010, wide excision left floor of mouth, modified radical node dissection left neck.
T1N0M0. IMRT started 11/22.
Never smoked, light social drinker
Also happen to be ICU RN
| | | | | Joined: Sep 2009 Posts: 96 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 96 | Welcome!!! This is a great site. I don't use it as much as I think I should. Great place where people really understand what you are going through.
31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
| | | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Nov 2010 Posts: 167 | Thanks All!
Susan: re: clear PET in September - I know!! I thought I was in the clear and then this lovely node decided to act up and let its presence be known.
MD's now see the density but it was hypoactive and small at the time of imaging - maybe just small enough to not react and then had a growth spurt!
Best wishes for your ongoing treatment - hope the buds make it till Christmas!
Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
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