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#125314 11-27-2010 10:08 AM
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I've been on a reading kick of "Cancer" books both at bookstores and my library. Most are written by Breast Cancer survivors but deal with generic cancer issues. As I go thru them, I'll post excerpts that tickle my fancy. I invite anyone else to join in with their readings and I won't consider it hijacking the thread. I'll keep sharing though so no pressure to do so.
Here's today's excerpt:
[quote]If you honestly think cancer is a "gift", then you can't come to my birthday party- 5 Lessons I didn't learn from breast cancer by Shelley Lewis[/quote]


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

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Okay, done with that book. Most of the 260 pages were not as amusing as the quote above which came off of the back cover. I often judge a book by its back cover or its inside blurb but never the front cover (technical adherence to the old maxim)
Major Problem with reading breast cancer books is the big disconnect between the authors radiation experience , worrying about weight gain plus a focus on uniquely female issues limits their relevance to me personally.

I did like this excerpt entitled "Beware the Attitude Police" about the unrelenting pressure to keep a positive attitude
[quote]We all want to be strong and brave and have a positive attitude, but what about those days when you just are feeling it? You can end up worrying that your're somehow failing as a 'soldier" and will not only disappoint your loved ones but will also cause your cancer to grow. Death by Bad Attitude...
[/quote] She goes on to quote Molly Irvin's 2002 article in Time magazine: [quote]I suspect cancer doesn't give a rat's ass whether you have a positive mental attitude. It just sits there multiplying away whether you are admirably stoic or weeping and wailing. The only reason to have a positive mental attitude is that it makes life better. It doesn't cure cancer.[/quote]
Next posts will be snips from Chicken Soup for Cancer Survivors.

Last edited by Charm2017; 11-28-2010 07:43 AM.

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Okay. I'm abandoning this thread. I thought that with "101 Healing Stories about those who have survived Cancer" in one book, I'd have to renew it at the library in order to post all the excerpts I loved. Nada, zip. I should have known after reading the autobiography of the son of the primary author, Jack Canfield of Chicken Soup Fame. His son painted a picture of an opportunistic charlatan who left a pregnant wife and first born son to shift for themselves while running off with a staffer of his new self help empire. He's rounded up all the usual self help suspects with their versions of The Secret and tales of curing their cancer with diet, meditation, visualization and positive thoughts or else being spiritually transformed.
Just not my cup of tea.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2006
Posts: 2,671
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Oh, Charm - I'm disappointed you're abandoning this thread. cry You had me all enthused about the Chicken Soup for Cancer Survivors. Oh well - I guess I will have to relegate this last disappointment to the "small stuff" category and try to move on. wink


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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While you may be abandoning the thread there are two books I would highly recommend. One is "The Power of Now" by Eckhart Tole. While I was crossing my eyes trying to make my wee brain follow what he was saying through parts of it, all of a sudden we hit part 4 of 4 and it all fell into place (I bought it as an audiobook on ITunes). I have listened to that part of the book many many times and find it comforting, inspirational and important. Having listened to it all, I'm not he ure if just listening to Part 4 would give you the same understanding of what he is saying, but I'm sure even that would be a help if you found the rest of it too tough to plow through.

Another fabulous book is "Chasing Daylight". It is written by and is the story of a KPMG CEO (52 I think?) who was handed a terminal diagnosis and how he handled it. I loved this book and found his approach admirable.

So Charm, while you may want to abandon this thread, maybe others would want to post what books have helped them.

Hugs.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Wow...I want to start a Self Help empire so I can get chicks! *smacks head* Why didn't I think of that?!?


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Donna

I have read both books and heartily agree that they are wonderful and inspiring. So much so that we even broke our rule about only checking books out of the library and bought a copy of Tolle's Power of Now. Heck, we even bought a copy of Eckhart Tolle's "sequel" A New Earth (Awakening to your Life's purpose)
[that one even made Oprah's Book club]
Have to say though, that even after multiple readings, it's easier to read and agree than implement in my life.
Tolle's books are not cancer oriented so I did not even think about them since this thread was just going to be on the plethora of cancer books I've been reading.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Posts: 3,082
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Anne-Marie

We wouldn't want you to be disappointed and none of need even "small stuff" added to what we endure, so I'll give this thread another shot. Actually in reading CSCS, I did find one I liked although it was the shortest of all 101 stories so I can post it in its entirety
[quote]Having an Attitude
Attitude is everything in recovery from cancer. You gotta have 'tude if you expect to take a licking and come back ticking. Tumor humor is not warm and friendly; it's scrappy and sometimes nasty and tasteless, a sort of chemotherapy for the spirit - necessary but (not always)nice.- Robert Lipsyte[/quote]

Last edited by Charm2017; 11-30-2010 11:26 AM. Reason: add author

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Sep 2006
Posts: 1,357
Likes: 5
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The Power of Now does deal with illness' in Part 4. He talks about them as "part of your life situation" and not actually who you are. I love how he talks about not allowing your mind to run to catastrophic thinking - bringing yourself back to the Now which of course if all any of us has. Well worth the read.


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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EricS

Now see, that's the Attitude I'm talking about. Thanks for the smile Eric
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2006
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Charm - I'm glad you are giving the cancer books another shot and that other books are being suggested. Anything that can help us with attitude when fighting cancer or with any other stressful situations is certainly worthwhile. I found the two Eckhart Tolle books easier for me to enjoy after seeing an Oprah broadcast/skype interview with Eckhart T. where they discussed his books and he explained some of the things he said. Two quotes I remember most are: "What you resist, persists" and "Accept with joy and enthusiasm". I have a little trouble with the "joy and enthusiasm" part but I can "accept" even though I may not agree with what happened. Getting unstuck from the resistance mode makes it easier to get control of a situation. The "Now" is so important, it's worth a little effort to try to find ways to make it peaceful and happy for ourselves. A book I really found powerful is Jill Bolte Taylor's book "My Stroke of Insight" in which she discusses the right and left brain and how to get some control over those brain cells that affect our attitudes.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Charm,
I bought the chicken soup book second hand, so Mr. Canfield received no royalities. However, this bit from Norman Cousins had us rolling. As Robert Lipsyte said, tumor humor isn't always tasty sick
[quote]When I was in the hospital my nurse really irritated me, so I decided to play a little joke on her.

One day, she brought in a specimen cup and requested a urine sample. After she left, I poured my apple juice into the cup. When she returned for the specimen, she observed it and noted, �My, we�re a little cloudy today, aren�t we?�

I asked to see it, removed the lid and said, �Yep, better run it through again,� and drank it. The look of shock on her face was priceless.
[/quote]


Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV
Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments.
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Another book on cancer I have read, is "When God and Cancer Meet" I bight this book deparate for help. This was the most amazing book I could hav eever read. Gave me hope and made realize that we are not alone in this cancer battle.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Susan

Thanks for posting that. I was a little grumpy when I dismissed the entire CSCSS (worried about my 90 day checkup which went well afterall). But that's why I encourage other OCF posters to share in this thread. In rereading it, I even loved the "punny" title of the article. For the rest of OCF, Heres that first paragraph that leads into the funny story you shared
[quote]The "Wee" nurse "when I was in the hospital, I had a a "We" nurse. She began each sentence with "how are we today?" "We need to have a bath" this really irritated me,so I decided to play a little joke on her...(segue to Susan's post)[/quote]
thanks again for having me reconsider this book. Actually the other Norman Cousin's story about the telephone operator and the coin phone is funny also.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2006
Posts: 2,671
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A very small and insightful book by a Zen monk that I found so encouraging is "True Love" by Thich Nhat Hanh (pronounced "tick not hon"). It's not about cancer, but can be so useful to caregivers when the loved ones they are caring for are in emotional pain. Some of the chapters describe "being there when someone is suffering", "deep listening", "restoring peace within yourself". It's a very quick read book and one that allows picking a chapter here and there without having to read every short chapter in specific order.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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I'm getting all these books!! Since i'm not sleeping much these days, would love to know any other books people have read and would recommend. Got "Man's Search for Meaning" already from Erics rave review on it.

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
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I just got "Man's Search for Meaning" by Frankl. It was free on my Wattpad app on my iPhone. The app is also free. How about that? I just can't tell if I have the whole book or not. I am on page 17 or 62 (electronic version) and it says "Part 1 of 1". So, is this the whole book? Is there a Part 2?


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Anne-Marie,

It's not a very long book but it is broken up into two "sections". The first part of the book is Viktor sharing his experience in the Nazi death camps, the second is his insights etc...

Thanks for the info about Wattpad, need to DL that for my iPod touch...or hopefully my iPad (come on Santa don't let me down big guy!!!).

Hope you guys enjoy it as much as I did.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Eric - thanks for info on Frankl's book. I am finding it to be a "keeper" with many sections that can relate or be helpful to the cancer experience. In looking over more carefully the selections I have from Wattpad, they are not the complete versions but give a good reason to purchase the complete version. Amazon Kindle gives "samples" also and the complete versions are very inexpensive ($5.22 for Frankl's book). When SC brings you your iPod or iPad, also check out these apps: Kindle Amazon, Stanza, Books on Board, eReader and Bookshelf.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Lance Armstrong - It's Not About the Bike, My Journey Back To Life'

"I didn't have cancer anymore, but I didn't not have it, either."

That quote caught my eye.

You know, this is a fairly 'famous' cancer book, and Lance's story/comeback to athletic prominence is great, but the first thing I noticed while reading the book is he was actually between contracts when he was diagnosed. He had no insurance. Strings were pulled because of who he is, and poof, he had insurance. Then, to top that, he speaks often in the book about his wealth, and the elitism of high profile athletes like himself.

I'm pretty sure he and I had completely different cancer experiences...


Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
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