#12529 10-12-2007 10:26 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Hello All
Well I am home , I came home yesterday around 5 or so , I ended up with a Total abdominal Hysterctomy . When They went in to do the surgery the saw that I was Missing part of my cervix ( how that happened I have no clue ) so he had to remove everything except my ovaries.
Def a little sore ..standing & sitting sucks as well as coughing . I can get around though. Just Glad it is over. I was just hoping To have it the other way for a shorter recovery.
To everyone on here..thanks for the support !! Wayne .MY condolences to you . Minnie ..hope you are doing well and I am thinking of all of you !! I try to check on here meds make me sleepy sooooo ..I Love you all and THANKS !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12530 10-12-2007 10:30 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Welcome back Sharlee. Glad to see everything went well.
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12531 10-12-2007 02:31 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hey Shar,
Happy to hear that you are home and doing well. Try to stay off your feet!
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#12532 10-12-2007 05:52 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Glad to hear it went well Sharlee..........take the meds and enjoy the R & R.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#12533 10-13-2007 02:18 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Shar,
Glad you're home and "trying" to get some rest. Feeel better soon.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#12534 10-13-2007 03:05 PM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Shar,
Hope you are healing well. I can't imagine getting rest in a house full of kids. I hope they are all being helpful and understanding of the rest you need.
Good luck,
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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#12535 10-13-2007 03:38 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Thanks everyone
I am Def trying to rest .. And this surgery was not ae easy as I thought it would be . I can't really move around alot at all and it isn't incisional Pain either. And then your backside gets sore from sitting LOL . I havent tried laying down yet as I havent figured how I would get up from that position. My time is spent in the recliner !! Kids are being pretty good . So far anyhow. LOL. I was supose to go get a biopsy on my tongue but I think that is going to be another week or so as I didnt know this was going to be like this. I def Didn't want to spend my birthday like this LOL my Dad is making my favorite LASAGNA ..but for some strange reason I think I have thrush ..I am on no antibiotics so I really hope I can enjoy it tomorrow !!! Thanks to all and I do get on here and read .
I spend alot of the day dozing on and off as I have nothing else to do ..I cant walk around .MAN I AM SO DONE WITH OPERATIONS !!!!LOL
BRING ON THE NEW YEAR I AM READY !!!! LOL
BEST wishes to everyone out there and I think of you all daily !!!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12536 10-14-2007 12:18 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Shar,
I seriously cannot believe that you were so careless as to have lost part of your cervix!!!---TUT!!
Hey, after 5 kids, thank goodness they've removed what caused them!!
But don't think you're gonna get over this quickly, and don't try to---OKAY????
Keep the kids on track looking after mom, call in every friend and relative you have, put the biopsy on hold til you feel ready.
Take the pain meds and 'float' for however long it takes.
Think about where the pain is coming from--and take steps to get rid of him if necessary!! Sorry, but I know from past experience that stuff doesn't go away!
At least you've still got your ovaries = hormones......hmmm-can't decide if this is a good or bad thing (am sure glad to be rid of mine!)--goood thing probably as you're young and can have 'another life'!
Look after yourself and let others look after you, so pleased to have you posting again!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12537 10-14-2007 12:56 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jeez, Sending wishes along with everyonbe else, Sharlee, that you give yourself plenty of time to rest and recuperate after this. I had a friend that had a total hysterectomy several years ago (about 14) and maybe they are not as bad these days, but she was mostly off her feet for 5 or 6 weeks as I recall. I can relate about the being done with operations feeling. Hopefully, you'll have years ahead with no major medical treatments of any sort after all this (I am hoping that for myself too)!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#12538 10-14-2007 07:36 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Glad you sound so good, Shar. Lemme tell you...nobody needs a uterus at this point in life. It's just a big pain, so good riddance to it! You didn't need a big surgery right now, though, so I sympathize with you. After many c-sections, I know exactly what you are feeling. Make sure that you breathe deeply as often as you can, and that will help prevent coughing. If you need to cough, either lean belly-first onto a pillow on a bed and cough or have someone gently/firmly hold a pillow over your belly so you can cough against the pillow and not against your stitches. It's the best advice I ever had for that type of surgery. Other than that, take care of yourself and don't expect to bounce back right away. Give your body a break!
XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#12539 10-14-2007 07:36 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | BTW--I, too, am curious about where your cervix went!! You are a medical marvel, a medical mystery-girl!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#12540 10-14-2007 07:38 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | .....and you know what?? If you don't have a cervix, or a uterus, you can't get cancer there! I find that to be a great comfort! You still need to get checked since you still have ovaries, but some of your risk has been removed. Yippee!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#12541 10-15-2007 10:42 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | LOL
I know that is what I said ..WOHOOO 2 less places for cancer ..specially since I have family history of cancer in those area's !! As far as where the cervix went ..I didn' get a straight answer, dr said it could have been lacerated during childbirth..But wouldnt someone have noticed or even noticed it as gone after the fact during pap smears ?
I asked the clinician I worked with at Planned Parenthood that question when she came to see me the other day and she said the cervix changes in looks after childbirth, so depending on where or what part was actually missing , they may not have noticed. ONLY ME I SWEAR !!LOL the strangest and most unusual things happen to me .
I am trying to acccept that it will be a bit before I can DO things..BUT you know how it is being a mom ..an being I just went through everything and wasn't capable..I just got back to "NORMAL" ( somewhat anyhow) and now I am on bed rest again ..UGHHHHHHHHHHHHHHHH and this time more so , Last time I could at leasr get up and walk around and I could go to store and bend over ..not that I had tons of energy or wanted to even ..but this time ..Not really even possible..I do get up and walk around house a bit ..BUT I wouldn't even try to go to store right now..It hasn't even been a week yet so I need to relax ..It takes time I know ..LoL
I am sooo impatient. tomorrow is one week and Dr says 6-8 ..I stil have 20 staples in me LOL... I know I know RELAXXXXXXXXXXXXXXXX...
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12542 10-15-2007 03:14 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Shar, When my friend went through this she was young like you and had the same problem with the idea of 6-8 weeks of recovery--especially having to be off her feet a lot of the time.
All of her friends donated videos from our collections for her to watch--she was a real movie buff anyway--to help her through it. She watched about 50-60 movies in those 6 weeks I think, but at least it gave her something to do. Maybe if you're a movie lover that might be a help for you. I imagine it is very hard being a mom of 5 and getting enough rest right now.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#12543 10-16-2007 01:26 PM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Shar,
If you can, please rely on family help to get you through and take care of yourself or something else will happen to you. You must just step up and take care of yourself sometimes. It will pay off in the longrun. I know you have really been through quite a lot. Your good day is coming though. Hang in there and keepup your sense of humor.
Admiring your courage,
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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