#12365 10-04-2007 03:29 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Hi all, Had my 'Review' today with Specialist. The Ugly is just piles of soggy tissues and a red scabby nose from a common or garden 'cold/flu' bug. And just my face in general of course! The Bad is--there's a met on my adrenal gland which was too small to be picked up/investigated on first scan. It's grown enough to now be visible The Good--I continue to have Zometa every three weeks to treat my jaw. The liver lesions are NOT malignant--probably cysts. The adrenal tumour had probably grown considerably before my chem started and has probably been shrunk some by the treatment. And finally--THE LUNG MASS HAS SHRUNK BY OVER 50%!! So a mixed bag, but for all those who ask generally---YES--chemo has 'bought me some more Quality Time'  Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12366 10-04-2007 04:25 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#12367 10-04-2007 05:08 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | I'll pour the drinks..
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#12368 10-04-2007 06:20 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | That's what I call 'Quality Time' Helen!
Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12369 10-04-2007 06:44 AM | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Brenda- I am so glad to hear it! I just saw your question to me on the other post-I'm still in treatment, I have a scan coming up in a few weeks to see how it's going. I still feel pretty good in general. The only wierd thing is that my hair is starting to thin out a bit...I thought that wasn't supposed to be a side effect of cisplatin. Of course, I still have to wax my eyebrows and lip. So unfair!!! Melissa
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
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#12370 10-04-2007 09:18 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | My hair is also thinned Mel---underarm forest though!!!!
I also feel pretty good apart from the 'fluey' thing, so hopefully your scan will be BETTER than mine---have to take age differences into account--LOL!
I have also experienced numbness in my feet for the first time---doc says 'chemo reaction' so feel better about that, mum had a toe amputated before they found that she had cancer, so it had been worrying me a bit.
P.S.---in spite of supposed 'skin sensitivity', my moustache can still cope with cream peel!!!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12371 10-04-2007 12:29 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Brenda ,
THAT IS GREAT NEWS !!! SO glad you had such news today !!! So now are they going to continue chemo ? I am soo soo happy for you !!!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12372 10-04-2007 01:07 PM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Great news Brenda,
I am so happy for you. You have such a wonderful outlook on life.
There was also a wonderful peace on CBS nightly news with Katie Couric on Sunday about a college professor with a cancer that has now gone to his liver and is inoperable. He gives "a last lecture" really to his children which is just an inspiration to watch and is on CBS' website to download you guys. I loved watching his courage.
check it out.
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#12373 10-04-2007 05:08 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Brenda, I sent you a pm earlier...so happy for you. Mel- My mom had IMRT, she has lost a nice layer of hair. wondering if it could have been from the Erbitux...on the upside>>>it appears to already be coming back in!
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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