Previous Thread
Next Thread
Print Thread
Page 1 of 14 1 2 3 13 14
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
My wife, the Lovely Linda, has breast cancer. We found out yesterday, the result from needle biopsys done on monday. There are 2 of "well differentiated, infiltrating , grade 1 of 3 ductal carcinomas." As I understand, "grade", as opposed to "stage", tells how likely it is to spresd. She goes for an MRI today and then her doctor is setting up an appointment with a surgeon. I feel sick just writing this, I feel sick thinking about it, I feel sick telling family about it, I'm sick of cancer.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2010
Posts: 179
"OCF Down Under"
Senior Member (100+ posts)
Offline
"OCF Down Under"
Senior Member (100+ posts)

Joined: Sep 2010
Posts: 179
Oh David,


I'm so sorry you have to go through it all again. I felt sick reading your post. I'm not very good with my words but just wanted you to know that my thoughts are with you and your family.

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David I am so sorry to read about your wife. Cancer is so unfair. It sucks!!!!! I will keep both of you in my prayers.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2009
Posts: 875
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2009
Posts: 875
Me too David. Just know that you have all the wonderful people on the forum pulling for your wife and praying you both have the strength to overcome this. You've done it once, David, so you can do it again with your wife. Be strong for her and we will all be thinking and praying for good results.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,406
David, my good thoughts are with both of you. This is most definitely unfair. Shit. I wish your wife all the positive things I can think of.

David 2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Get her to the best breast cancer center available.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
That sucks!! Cancer Sucks!! I am so sorry to hear that. I will be keeping your family in my prayers.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2008
Posts: 706
David- Hang tough. You guys can overcome this!


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
Joined: Nov 2007
Posts: 681
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2007
Posts: 681
David,
Quite a few of us have also had BC. None of it is good but with the recent improvements made in treatment there is more hope for a successful recovery and long term survival. I have a sister who has had a very agressive form of BC for 6 years and has been responding well to chemo and meds which seem to be keeping it under control. I tease her because she is like the Cheshire cat in Alice in Wonderland. The spots grow and disappear and sometimes her scans come back clear for a while and she is off chemo for a few months. If she had this a few years earlier she would probably not be here today.
I would recommend that you discus Linda's case with your doctors. I was encouraged when I was told that the drs. I had were the best for what I had. It would be good to talk w the cancer support person(s) at your facility. There is so much info and support for BC that the info can be overwhelming.
Praying for you in your new role as caretaker.
Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
David,

I, too, am so sorry that your wife has breast cancer. My Mom had BC back in 2003 and is a healthy 82 year old woman today. It is stressful and given what you have already been through, probably even more so. I wish your wife the best outcome. Being her caregiver will be a role reversal for you but so very worth it. All the best to you as you embrace this new challenge.

Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Oh David - I'm so sorry to hear of your wife's breast cancer. I'll be praying for the two of you to be surrounded by the very best doctors and support people around to help you through this latest challenge.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Apr 2010
Posts: 201
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2010
Posts: 201
David, Sorry to hear that you have been striken by this disease again. I wish you the best outcome. My prayers are with you two for great Dr's and strength.


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Jun 2009
Posts: 440
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jun 2009
Posts: 440
Oh no! I'm so sorry to hear this David. I will keep Linda in my prayers. We are here for you as you set out on the caretaker role.


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Thank you all very much. I know that I have great support from my OCF friends. I've looked around at some BC forums and I haven't seen any that come close to matching the close "family" feel of OCF. As for taking on the caregiver role, I know I can't do anywhere near as great a job as as Linda did for me but I'll just have to give it my best, won't I. Chico has a lot of great doctor's as it's a popular retirement area and has a Cal State University campus. Enloe Regional Cancer Center is top notch as ias the Valley Breast Care Center. My mother and sister both have survived BC, Mom for 11 years and my sis for 6, after being treated at these facilities and we have faith in them. Meanwhile, I have to see about getting a refund for our air fare to Puerto Vallarta (I did buy insurance which covers medical situations) and see what I can work out with the resorts down there. The mundane concerns of life don't just go away at times like this. I'm just very happy to have you all to turn to to make me feel a bit less stressed and a bit more blessed.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Oct 2010
Posts: 50
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Oct 2010
Posts: 50
David I am so very sorry to hear about your wife. I am so very sick of cancer. My mom died of bone cancer 1996, my dad died of lung cancer 1997,Bobs mom had breast cancer at 2 different times an beat them both,5 years later she died of lung cancer 1998.I my self had skin cancer on my nose they did a small skin graft and I got a new nose 2004, and now Bob I wish the word cancer had never been invented. It is the foulest word I know. Push forward and help her beat this,we will be here when you need us.


Deb taking care of Bob, left retromolar tirgone&alveolar ridge SCC stage IV pT4anomx
11/3/10 partial mandiblctmy,trech,chest flap
11/9/10 Trech out, PEG in
1/19/11- 3/9/11 Cisplatin x3, IMRT x33
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
David

In a fair Universe, there would be a rule that cancer can't strike a household twice - sort of like the lightening axiom.
This Sunday's comics are mainly all in pink to highlight the scourge of breast cancer. With your special perspective as a cancer patient/survivor, you will be a wonderful caregiver to your wife in this terrible time. Keep the faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jan 2009
Posts: 216
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 216
David - Give Linda my best and let her know she will be in my thoughts and prayers. This cancer thing just sucks!!!! Still dealing with dh's radiation damage, my best friend from high school just finished with breast cancer treatments and now my sis in law was diagnosed last week with colon rectal cancer. You, my friend, will be an excellent caregiver because you know what it's like to go thru this stuff. Charm is right....there oughta be a universal law against this...or a universal law against cancer would suit me just fine smile Hang in there.


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
David she will be a lucky lady to have such a strong and supportive care giver as you.all the luck and love in the world to you both,xx


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
As Malka stated, they have come far in the treatment of breast Cancer and are having much success treating it. Lets all hope for the best and a cure for her. You have my prayers and best.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Appointment with surgeon who specializes in breast care on wed. Hopefully will get MRI results before then. I'm really thankful she is able to see the surgeon so soon. Let's move on and kick cancer's butt again.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2010
Posts: 26
JDR Offline
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Sep 2010
Posts: 26
I am sorry very sorry about your wife and will keep you both in my thoughts.


CG to 44 year old husband, Dx: 9/23/10 SCC T2N0M0 (Right Tonsil)

Radiation only started on 10/13/2010
13/33 Radiation Treatments done!
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
David,
Sorry to hear about your wife having breast cancer. Is it ductal in situ? Is it non-invasive? I had ductal in situ this summer and only needed a lumpectomy as they were able to get clear margins. I hope she has a similar diagnosis. I was stage 0.

Be forwarned that breast MRIs are extremely sensitive and throw a lot of false positives. I had one which led them to do a biopsy on other breast which turned out to be all clear.

Good luck to your wife and keep us posted on her treatment.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Aug 2005
Posts: 307
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Aug 2005
Posts: 307
Gosh David, this just sucks....I am so sorry. As DavidCPA said, get her to the best breast cancer center! She can beat this just like you did. Please let her know we are all here to support the both of you.

Hugs,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Joined: Feb 2010
Posts: 235
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Feb 2010
Posts: 235
To say this sucks would be an understatement. Just wanted to add my voice to all the people wishing Linda well. And I think you'll be a great caregiver. Your concern and love is so apparent.


CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Eileen, there is 1 ductal and 1 lobular, both well differentiated and infiltrating. Thank you all for your concern and support.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
We saw Linda's surgeon this morning and the news is about the best we could hope for. She will have a lumpectomy and 2 to 4 nodes removed for biopsy, followed by 6 weeks of radiation. Still, she does have cancer and is still upset about that but the surgeon definately lifted our spirits. Her surgery will be next wednsday afternoon.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Aug 2005
Posts: 307
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Aug 2005
Posts: 307
That is wonderful news David! Give Linda a big hug....

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
That is good news David. Best wishes for the surgery next week.
She has a no doubt got a great caregiver in you this time!!
Love to you both.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David, thanks for the update. I will keep both of you in my prayers.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2010
Posts: 201
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2010
Posts: 201
Great news David!!


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
David,

In the past year plus I have been through 2 employee's "bout" with BC and both have finished Tx and both are doing great.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Hi David,

Someone on this forum sent me this link when I was diagnosed with BC this summer. You might want to check it out.

Have you checked out http://community.breastcancer.org/

Good luck with the surgery. Will be thinking of the two of you.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
After her being your caregiver and you now being hers, I have an idea that she will be fine and that your toughness has given her more fight. Give her my best wishes and prayers.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
And have them check her vitamin D level when they do the other blood work. We BC survivors are supposed to have above normal vitamin D levels. Normal is 30. I was at 45. My doc wants me at 60. It's a tiny pill you take once a day.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's surgery went well today. Sentinal nodes were negative and surgeon says the margins looked good though we won't know for sure until the pathology report in 3-5 days. We are so relieved, but she still has a hard road to go. Radiation should start in about 4 weeks. I sincerely hope that we have seen the last of cancer 'cause, as we all know, "Cancer Sucks". Leave my house and never darken my doorway again.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: May 2010
Posts: 135
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: May 2010
Posts: 135
So glad all went well for Linda today. Hopefully you can get that "c" monster out of your lives once and for all.



Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
Joined: Apr 2010
Posts: 201
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2010
Posts: 201
So glad surgery went well. Thanks for the update you have and will continue to be in my prayers.


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Happy to hear that Linda's surgery went well David.
Hope the pathology also brings good news and the waiting is not too painful.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Nov 2007
Posts: 681
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2007
Posts: 681
David,
Add my echo to all the above . I will pray for a good pathology report for Linda and an easy time with the radiation. Neg nodes and clean margins are a double blessing.

In preparation here is some advice I got from the oncology nurse before I started radiation for BC. I hope it helps make life easier for Linda:
1) go braless
2) wear all natural fabrics - I found that cotton JonesNY tshirts wash well with v little shrinkage and hold color well. With a loose shirt/blouse/jacket T shirts can be worn for everything from casual to v dressy and no one noticed - no need for those expensive "BC camofalge clothes." Buy a size larger than normal for comfort.
3) At least twice a day use Medline Remedy skin repair cream (no closer 4 hr b4 radiation) on whole chest area, throat and over sholders to back. If this is hard to find, try a local discount pharmacy or Walgreen's has on line. Even if you have to order more than one tube it is very good for allpurpose use.
4) Do not use regular deoderant, use a crystal type.
5) Wash gently, no very hot shower. I used baby washcloths.
Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
David - I'm so glad for the good news and hope that it continues to progress so well for Linda and for you. Just seeing these wonderful posts, with such practical suggestions and heartfelt concern expressed, makes me realize more than ever, what a great "family" feel there is to this forum. Like no other for sure!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Aug 2005
Posts: 307
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Aug 2005
Posts: 307
That is wonderful news David. Give Linda a big hug from all of us here OK!

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Thanks Malka, I'll pass ypir advice on to her. And I'll have to be careful but will be glad to give her a big hug. My mother and my youngest sister are both bc survivors (Mom had a mascectomy 22 years ago and Sheryl had a double mascectomy with chemo 15 years ago) and were at the hospital with us yesterday. Knowing how much good it does to have people to talk to who have been there and done that, I'm really glad they both live here in Chico. Sheryl brought us some wonderful home made chicken chimichangas and a salad for dinner yesterday eve. Yum.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Glad the surgery went well. Tell Linda we're all thinking about her. Let's hope for clean margins.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
We saw Linda's surgeon this morning. Turns out that the margins weren't all that clear after all. There are what the surgeon called "speckles" of disease in the surrounding tissue. So now, it's a decision whether to try just removing more of the tissue and hope to get it all or to go ahead and do a masectomy and be sure. Not a great day. At least the nodes were confirmed to be clear. I'm leaning towards the "just get it all out" option but there are a few more tests before the final decision.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's breast got infected and one incision won't heal. Going in on tues and if the infection has stopped draining then Dr. will stitch it up. Meanwhile, Linda is just totally depressed and I really don't know how to bring her out of it. I understand, of course, but wish I could get her spirits up. She's a strong person, has to be to be a RN (not to mention living with me) so I know she has it in her to fight this and have told her so but every time I try to say something comforting or ask if she feels any bettter or any such thing she just starts crying. She's also covinced herself that if she has a masectomy that I'll no longer love her. I knew that care givers have a hard job but didn't know how hard. Cancer just plain bloody out and out sucks!


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
I am so sorry to read the latest. I did not have a carer but I guess there are some days when you just can't get it right no matter what you do.
It does seem to me that Linda is going through normal female type emotions with her cancer.
Hope by Tuesday that things are a little better.
Love to you both
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
An "oncotype dx" test was run on the tissue that was removed during surgery. This test is supposed to tell how likely recurrence is and how well the cancer will respond to chemo. Linda's score was 13 on a 0-100 scale, meaning recurence is unlikely (about 8%) but also that chemo wouldn't have much success against her cancer. We'll see both the surgeon and the oncologist, who we have not yet seen, during the coming week and then they will put there heads together and figure out the tx plan. More waiting.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Mar 2008
Posts: 404
Likes: 2
"OCF Down Under"
Platinum Member (300+ posts)
Offline
"OCF Down Under"
Platinum Member (300+ posts)

Joined: Mar 2008
Posts: 404
Likes: 2

David

I'm so sorry to hear Linda is having to deal with so much. My thoughts are with you, Linda and your family.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2008
Posts: 706
This is just so unfair to you both. Sending out warm thoughts your way.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Thinking of you both and wishing you well.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2006
Posts: 756
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 756
Likes: 1
David,

We all know waiting is hard. I'll keep Linda in my prayers.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Joined: Jan 2009
Posts: 216
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 216
David....my thoughts and prayers are with you and Linda and I hope they will come up with the right treatment. Sometimes caregivers just can't say anything right but sounds to me like she's just going thru the normal thought process most females would go through. She will work it all out and all you can do is be there and wait it out - harder said than done but do-able.


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
We are going to meet with Linda's oncologist on monday. Linda knows him from years ago when she worked in oncology at the hospital. He's generally considered number 1 in the region. Meanwhile, she still has a lot of pain and the wound where it got infected looks very nasty. She's trying to cut back her pain meds but I think we all know what happens when you wait to take them, the pain becomes that much more difficult to get under control. Anyway, I guess we won't know until after Thanksgiving what the dr's decide to do.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David, hope Mondays appointment is a good one. Now is not the time to be cutting back on the pain meds. Poor Linda, hope she feels better soon. Prayers to you both smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
David,

All my best to you and Linda with her appointment Monday and that they can resolve her infection. And I also hope that you both can have a restful Thanksgiving.


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Jul 2006
Posts: 388
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jul 2006
Posts: 388
David, we hope the infection is showing signs of clearing up and that the next news you get will once again be uplifting to your spirits. Women are surviving BC so often now, including your Mom and Sister, plus Linda had clear nodes, so concentrate on those positive events. We are here for you and your wife all the way. And we join you on the DOWN WITH CANCER bandwagon.


Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Thursday was one of those rare occasions when both of my sisters, my brother, mother and myself were actually all together for Thanksgiving dinner, along with my brother's in-laws, a few neices and nephews and a brand new grand niece. It was a very good day but as we were leaving Linda said to me " I wish everyone would stop asking me 'How are you doing?'. Reminded me of the "Don't yo just hate it when..." thread on here.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
David - How great that you and your family were all together for Thanksgiving! I do hope everything goes well tomorrow with Linda's appointment with the oncologist. I 'm sure she knows how well you understand when those "Don't you just hate it when. . ." comments come along. She has a wonderful support system with you by her side - and we are all here, too - hoping for more positives coming your way.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda is now scheduled for a masectomy on 12/16. Get rid of this cancer crap for good. Of course, she's feeling pretty down about it but who can blame her?


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Sorry to hear about the upcoming major surgery Linda must go thru. She will get thru this and move on. Hopefully she will be open to seeing what a plastic surgeon can one day do for her. Im sure she would be amazed at the options available if she would want to take it one more step.

Linda is blessed to have such a wonderful and understanding husband by her side thru this ordeal. Happy Holidays to two very special people.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
love and hugs to you both David x


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
Wishing Linda all the best with her upcoming surgery. We are all different, but my reaction to having cancer in my body was "GET IT OUT - AND NOT NOW....BUT RIGHT NOW!!" I hope Linda is feeling the same and in time will reconcile her losses with the "glad its out" feeling.

You have been an awesome caregiver. Wishing you both the best.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Had one last meeting with surgeon this morning. Thursday is the big day. We really like this surgeon. Pretty much all she does is breast surgery and she knows her stuff. Then went to the boutique that specializes in women who have had breast surgery and got Linda measured for a bra with a prosthesis. She's starting to be a little more upbeat about it but still cries when discussing it with any one. I just remind her that after thursday she will be cancer free and that's what really matters. That and "yes I will still love you without your breast". That one's a little tough for her to get past because as an RN she's seen too many men just get freaked out and refuse to even touch their wives after this surgery. I hope I'm stronger than that.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2009
Posts: 126
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Sep 2009
Posts: 126
You sound like a great, caring and compassionate husband. We wish you both the best!

Sharon


Sharon, 57; Hard Palate; T1, High Grade, DX 6-12-09, Surgery, maxillectomy 7-14-09, 33 RT (9-2-09 to 10-19-09); Prothesis (obturator). None smoker, non drinker.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Best wishes to Linda for a successful surgery. You are a great husband so dont worry you will get thru this together just like you did with your cancer.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2010
Posts: 201
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2010
Posts: 201
Many prayers coming your way! I am going to send you the address of my friends blog for Linda Via facebook when I get to my computer. She is 31 diagnosed with breast cancer. Opted for a double mastectomy and chemo. She is truly inspiring.


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
Thinking of you and Linda!


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Best wishes for Linda's surgery.
It is great that you have a surgeon that you like and have faith in.
Thinking of you both.


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Spent the entire day at the hospital with Linda. My Mom and sister, both breast cancer survivors, came to lend support. I think we all know how much it helps to know others who have gone down that road ahead of you. The surgery went very well and the surgeon is optomistic about recovery. I don't know if I dare say that Linda is cancer free as this is a very devious, sneaky disease and I don't trust it one bit, but I am hopeful that it is so. Now the long process of recovery, physical and emotional.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
Glad to hear surgery went well so just take it one day at a time. No declarations required! Hopefully recovery will go smoothly and uneventfully!

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Let's pray for a total cancer free forever recovery.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Congrats on Lindas successful surgery. You are right that it is invaluable to have others like you close by. They are the ones who truely understand the best. A caregiver can understand but its on a different level. Hope Linda is comfortable and has a smooth recovery. Prayers to you both for very long, healthy, and cancer-free futures.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Great that the surgery is behind Linda and was successful.
May the physical and emotional healing go quickly.
Wishing you both a long cancer free life.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Got Linda home from the hospital about 3:00 this pm (it was supposed to be about noon but these things never seem to go on schedule). She's in good spirits, glad to finally have this behind her and the surgeon said that yes, cancer free is an accurate description. Now, if I can just get her to sit and rest abit..


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Sounds like so far..so good David but she has to be tired after all she has been through.
Maybe it will kick in soon and she will want to sleep and rest.


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
So glad to hear that Linda is home. I always do the same thing when I get sprung. I buzz around straightening up and darn it if every single time dont I wear myself out. I hope she is feeling alright and doesnt overdo it. Im sure she will feel much better being home than in the hospital.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's surgeon called last night to tell her that one of the "sentinal nodes" that had been removed during the surgery has tested positive. We meet with her tomorrow and then the tumor board will discuss this on Jan 4. Until then, I really don't know what to think of this.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David, Im sorry to hear this. Im not up on what that means. Best of luck with tomorrow's appointment. Prayers to you both. Please keep us posted.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2008
Posts: 706
Sending prayers of strength your way.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
We saw the oncologist today and the plan is 4 chemo tx 3 weeks apart follwed by radiation. No node dissection, that's the good news. So as soon as she gets her drain tube removed, hopefully this week, we can schedule the 1st chemo session. I so hope that this will be the end of it.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jan 2009
Posts: 216
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 216
My thoughts and prayers with both of you.


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
Joined: Aug 2005
Posts: 307
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Aug 2005
Posts: 307
Sending lots of positive thoughts and prayers to you both!

Hugs,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Be strong! Linda is on the right path to being well. Its a long road for anybody who gets cancer. Nobody gets off easily. Best wishes to you both.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda starts chemo tomorrow. 4 sessions 3 weeks apart. The beginning of the end for this cancer.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Nov 2007
Posts: 681
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2007
Posts: 681
Praying that "eraser" treatment should be the end of this so that you can enjoy many healthy years together.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Joined: Jan 2004
Posts: 1,116
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2004
Posts: 1,116
Praying for both of you, I am sorry to read this. You are both in my thoughts and prayers.


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Wishing her cancer GONE real soon.
Love and thinking of both Linda and you.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Jun 2009
Posts: 875
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2009
Posts: 875
What a wonderful attitude and statement, "the beginning of the end of this cancer." I am sure that is the way it will be, and pray for a complete recovery for Linda. She's lucky to have you to take care of her. God bless you both.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's white cell count was down to 1.7 (very low) and she has to have 3 injections of neuprogen (sp?) to bring it back up. The road to victory is never easy.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David, thanks for posting an update. Ive been wondering how you and Linda were making out. Sorry to hear things arent the best. Ive had to get those shots already. They should help to make Linda feel better.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's birthday today and no appointments for either of us. Yippee, a day off.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2009
Posts: 875
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2009
Posts: 875
David:
Isn't it wonderful when you have a day off from the doctors? I think so. That can be one of Linda's Birthday presents wink
Happy Birthday to Linda.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Joined: Jan 2011
Posts: 6
Member
Offline
Member

Joined: Jan 2011
Posts: 6
So sad to hear,but hang in there they can do alot these days.


T2N2bMx poorly-differentianted, HPV (negative)basaloid SCC of right tonsil
Diagnosed 7/16/2010 Began 7 weeks of radiation and chemo on 9/2/2010
Finished 7 weeks of radiation and chemo on 10/20
Final PET scan on 1/21/2010 Prognosis: cancer free!
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Met with Linda's Rad. Oncologist today. Talking about 5 days a week for 5 1/2 weeks, but won't start til chemo is finished. It's so wierd going back to these same places where I had my tx. Had hoped never to see them again. Linda has 2nd round of chemo tommorrow. After the last one her white cell count dropped to 1.7,000 so she had 3 days of nuprogen injections which brought it back up to 11,000. Hope that doesn't happen again.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David, sorry to hear that Linda is continuing on with chemo. Five weeks will go by quickly. Best wishes for easier days ahead!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Aug 2005
Posts: 307
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Aug 2005
Posts: 307
David,

Sending lots of prayers your way. I'm sorry you are both having to go through this....

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda is going in monday for a scan for possible tumor on her parathyroid. If so then surgery would delay start of radiation. And on we go.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David I was hoping things were going better. Im sorry to hear this. I will continue to pray for Linda. Hoping this test shows nothing is wrong.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's scan showed activity on her parathyroid. The doctors are pretty sure it's not cancer but now they have to decide if surgery is necessary. Meanwhile, today was chemo #3 of 4. 3 weeks from now she'll be finished with chemo, then, if no surgery is required, on with the radiation. If all goes well, we're looking at the middle of june b4 this is over. Hopefully.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
1 more chemo to go. An ultra sound has been scheduled for the 21st for the parathyroid. Got everything that can ctross crossed.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Glad to read that there is only 1 Chemo to go for Linda.
I will also keep fingers etc crossed for a good result from the ultra sound David.
Love and best wishes
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Jan 2009
Posts: 216
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 216
Crossing fingers and toes etc with you....hope everything goes well! Thoughts, prayers and good energy sent to you both.


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda goes in for a sonogram of her parathyroid monday. Hopefully things will be clearer after that. Her oncologist says that even if she has surgery it may not delay starting radiation, which is planned to start 1 month after her last chemo, which is this coming friday. I saw my gp yesterday. He asked how the prozac was working for me, if I still had problems with depression. I told him that my wife is battling breast cancer and I've been diagnosed with atrial fibrilation which comes and goes and I don't know if the V.A. will cover the meds that my cardiologist prescribed and, I only have 2 days of the samples he (the cardiologist) gave me left. Naw, no depression here. Oh, that's not even to mention that my step son ( type 1 diabettic since age 9) has been having wild swings of his blood sugar lately. Oy.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jun 2009
Posts: 875
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2009
Posts: 875
David:
My thoughts and prayers are with you and Linda. Hopefully, things will improve - I pray they will
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2008
Posts: 706
Will be saying special prayers for your family. Hang in there-you sure have been through hell....


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Hey - crossing everything for you and your wife. Hopefully things improve and it's nothing on her parathyroid! Take care and sending many prayers your way!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
The sonagram came back negative for cancer on parathyroid (YAY). So an appointment with rad onc. next week and we will hopefully get going on the next phase (5 1/2 weeks of radiation). I'm ready to get off the roller coaster now.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
2 RTs down and 26 to go. She already feels sunburned, I guess due to scaes from surgery. I don't think I started to feel the burn for quite a bit later but i didn't have surgery. Also, the position they put her in (arms over head) is very uncovertable because she has had injuries to both shoulders. This is going to be long tough going.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Aug 2005
Posts: 307
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Aug 2005
Posts: 307
Hang in there David!

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Best wishes to both Linda and you David.
It does sound like it will be a tough time for the two of you.
There will be and end to Linda's treatment and then to cancer forever.
Thinking of you ...
Gabriele




History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's starting the 4th week of her 5 1/2 week rt course. She's starting to get a burn going and is tired and cranky (which, of course, I never was). Any way, rounding the final turn and, "DOWN THE STRETCH THEY COME".


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Nov 2010
Posts: 167
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Nov 2010
Posts: 167
All the best to Linda - light at the end of the tunnel! Hang in there- both of you!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
Joined: May 2011
Posts: 13
Member
Offline
Member

Joined: May 2011
Posts: 13
I wish you both all the best!!! You sound like you have a great attitude and that is so helpful.

Misty


I was 42 when diagnose two years ago, smoker, light alcohol use, partial gossectomy, left neck dissection, peg, 7-09 IMRT, no chemo deemed nesseccary, 3-2011 HBO.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Unfortunately it's an hour by hour struggle to keep a decent attitude. Sometimes I just feel like running down the street screaming. But none of us needs to see that so I keep up my attitude, it's healthier that way.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jan 2011
Posts: 571
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2011
Posts: 571
Hang in there, David. Linda is so lucky to have you. Remember to take care of you and to do things to feed your soul, to comfort your spirit. There isn't a rule that says you have to be strong and stoic 24/7. Be kind and gentle with yourself.

I hope that looking forward brings you and Linda hope and happy memories bring you two great joy to see you through her treatment and recovery. Every day is a step closer, every week is a leap forward.

Keeping you and Linda in my thoughts,

Sandy




Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
3 more! Then there will be 5 "lighter doses " over the scar tissue. Linda is getting badly burned and we know from experience that even after rt ends it keeps cooking for a while longer BUT, we are almost there.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Nov 2010
Posts: 167
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Nov 2010
Posts: 167
Love the countdown - the smaller the number the better! Thinking of you guys!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Well, that countdown has hit the smallest number it can. 0. Zilch. Nada. No mas. Radiation is complete! Poor Linda is so burned and that's a really hard area to put a dressing on and have it stay but the end is in sight. Already the burned area looks a little smaller. Apptment with oncologist on monday but other than that, no more running hither and yon for a while.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Great news, David! - Now you and Linda can look forward to running hither and yon in beautiful Puerto Vallarta!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
At least that it DONE.

Congrats to the both of you.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Congrats Linda!!!! Now let the healing finally begin.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2011
Posts: 571
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2011
Posts: 571
ZERO!!!! YAY!!! Getting to stay put is soooo nice! We had some long trips to all the ENT, MO, and RO appointments...not as many as we WOULD have had...but, it is so nice not to have to be running to appointments all the time! Less stress, less of the 'what time we gotta be there?', less 'let's get our behinds into the car...again' and more time to relax and heal. And, healing is happening inside and outside and all around!

Keep flying above this episode and soon it will be behind you! Here's to distant memories and happy survivors! oh...did I say Yay?!!! YAY!!!!


Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
Joined: Aug 2009
Posts: 207
"OCF Down Under"
Gold Member (200+ posts)
Offline
"OCF Down Under"
Gold Member (200+ posts)

Joined: Aug 2009
Posts: 207
Fear is always there my love.....you are both legends.....always a bed or 2 in Melbourne for a vacation...woo hoo!!!! Love you both so much...xxxx


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Talked to Linda's oncologist thursday. Results are in on her bone scan and there is no sign of cancer anywhere. We sure needed some good news and got it.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
That's wonderful News!! So happy for Linda and for you! Yay!!! Now celebrate and go do something fun for the two of you!!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David, thats the best news you could ever get. Congrats!!!! You and Linda have weathered a few rough years. Now its time to finally put it all behind you both and enjoy life again.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2011
Posts: 267
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2011
Posts: 267
Congratulations to you both!


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Fantastic news..Congratulations on getting a break at last.
Celebrations are definately in order wink
Love
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda's burns have healed up nicely and she has more energy. Her hair is almost long enough to need combing, except for one spot which remains bald. Hope that will grow in eventually. I'm trying to grt her to look at the boutique that carries the bras and stuff for women with mastectomies and see if we can find her a swim suit so we can go swimming at the creek but she's having a hard time still with feeling disfigured. Hopefully time will heal the wounds to her self esteem as it heals the physical wounds. I won't push her on it. Many thanks for all the strength and encouragement we've gotten from you all. You're all awesome.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Tell her that she's beautiful... She got through the cancer and that's definitely celebration worthy. I know that for some women breasts are an integral part of their femininity - but her scars are battle scars - she should wear them with pride. The disease she fought could have stolen a whole lot more... Hugs to you both!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jan 2011
Posts: 571
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2011
Posts: 571
Hi David,

That Linda has a husband who is yearning for his wife to put on a swimsuit so they can go swimming together should bolster her self-esteem considerably. It shows how much she is loved and valued. It shows how much her company means to you. She is a lucky woman.

It's hard to overlook physical scars when they are fresh and still red and visible. As the physical scars fade, the emotional and mental ones will, too. Just by being who you are, you are helping all her wounds heal. It isn't just the physical caregiving that gets someone through. It's also the love and the steadfastness, constancy, unwavering support for the person not just the patient. Linda was a patient, she is now a survivor. Throughout the whole thing, she is a woman. Keep treating her like a woman first and foremost, and she'll regain her self-esteem. You are doing a wonderful job. Keep at it.

I have heard there are wonderful things that are done with reconstruction. A friend of mine had a single radical mastectomy and said the side that was reconstructed using tissue from her abdomen (procedure like a tummy tuck) was better than the original. Those were her exact words. She was very happy about the results. Is that an option for Linda?

I hope Linda doesn't let her thoughts about her body take away things she enjoys doing. Life's too short to let any parts of it get stolen by our insecurities.

Sending a big hug to two of my favorite survivors!

Sandy





Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
It's the way I figure it. If she gets a swim suit with a prosthesis (she has a couple of bras) it's not likely that anyone will really notice and if they do, well it's just proof that she's willing to fight for her life. kind of a "Red Badge of Courage".


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
You are absolutely on the right track with the way you are figuring it David.
I have read this somewhere and liked it very much as is so true for many of us here;
� My scars are my red badge of courage. I view my scars as a sign of survival and, frankly, I don't care if it isn't pretty. I am very proud of them.�
For me the swimsuit issue is a little different�I only show my body in a women�s only Aqua Aerobics class. Have that normal �extra pounds� female thing going on blush
Hope you and Linda enjoy your first swim together before you run out of summer over there.
Love to you both
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
I totally agree... The scar on my arm is a battle scar! Its not a battle I've won yet - but I wear it with pride as it shows I not go down without a fight! smile your wife needs to be reminded that anybody whose opinion would matter - already knows about her fight - and those that don't - their opinions are unimportant! She will eventually come to realize this - and yes as sandy said there s reconstruction as a possibility - hugs to you fr being a great hubby -- and her for being strong enough to fight!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda got the all clear on her mammogram. Huzzah!


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
YAAAAY!! Congrats to the both of you! How is she doing by the way?


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
that is so awesome... so is mexico in your future... im jealous... love mexico... ;o)


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Linda is still pretty fatigued and I guess a little PTSD and I have a couple broken ribs but yes we are planning to go to Puerto Vallarta for 2 weeks rught after Thanksgiving. As long as I don't do anything stupid and break any more bones.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
That's soooo great it will be just what the dr. ordered!!! She'll get to destress, and you can float in the ocean on an air mattress and heal! Have a great time!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Page 1 of 14 1 2 3 13 14

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5