| Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | Hi all, I am currently about 9 mos post op. I have had 3 good checkups. I have a couple questions. First, I have only had 1 scan since my last surgery in November, I guess I thought I would have them more often. Like every check up.Is that normal?
My second inquiry is, my tongue is pretty much tethered to the floor of my mouth, I already had one surgery to loosen it. Well it grew back down almost imediately, so I am going to have another surgery. They are going to put a skin graff under my tongue, instead of just clipping it. They are hoping it wont grow back down. My question is, can I expect to speak more clearly or just eat easier. It seems no one tells me what outcome I can expect. After the first surgery to loosen my tongue, it seemed my speech was less clear, but by the third week it started to grow back down and I never really got a chance to re-learn how to talk again. I hope I am making sense. If anyone can tell me what their experiance was,or has any information about this proceedure, I would really appriciate it.
Thanks Wendy
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wendy, as far as the scans go most people have one every 6 months for the first year. Then it moves to yearly. As long as there are no problems, the docs dont do the tests.
Im not familiar with the problem of regrowth. My OC was located in my cheek and jawbone. It sounds very unusual to have the regrowth continually happen. Hope someone who has had this responds. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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