| Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 | I hate to have to say this and I still cant believe this is happening but my mom passed away yesterday morning in her home. She had only done 2 treatments of chemo. It was just too hard for her. She was too weak. She hadnt received much nutrition at all because it made her sick. They day prior to her passing, she had actually kept down two cans of food and told us she felt better, and she seemed to look better...monday and tuesday were her good days. Tuesday morning she started hemorrhaging, a lot. My step dad was with her. She collapsed and didnt regain consciousness. I was notified at work while I was teaching.
Best of luck to you all and thank you for being there for me during this awful time in my life
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | What can one say..... that's just horrible. Anyone who has lost a parent knows how devastating that can be. I'm truly sorry.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Oh Emily! I feel so sad for you, I know you love your mom to pieces, it showed through your emails/posts, I know you will miss her dearly. You and your family will be in my thoughts and prayers as you go through this difficult time. Stay well my friend! Sending you cyber ((HUGS))!!!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2010 Posts: 201 | Emily, I am so sorry for your lose. I find peace knowing that your Mom was able to come home and not pass in a hospital. I hope you find peace too. I can't imagine how it feels to lose your Mom. You are in my thoughts and prayers through this difficult time. Hugs!!!!
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads 1/10/2011 Clear PET!!!
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Emily, it is impossible to know your pain. I am so sorry that you lost your Mom. I had been following your posts and could see how dedicated you were to helping her.
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2005 Posts: 307 | Dear Emily,
I was so sad reading your post....I have no words....you and your family are in my prayers. I am so sorry.
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | Emily-So very sorry for your loss.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Emily,
There are no words.
Keeping you and your mom in my prayers.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Emily, my thoughts are with you. Your mother was very brave, as are you.
David 2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Emily, I am very sorry for the loss of your mother. You gave her the best possible care she could have had. Let the good memories help ease your pain in the difficult time. I will keep you and your family in my prayers. ((((HUGS)))) ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | Emily, I'm so sorry for the loss of your mom. She was very lucky to have you fighting so hard for her and being there for her. You are WAY TO YOUNG to have to be dealing with this and to be without your mom. I'm so glad that she was able to make it home and know that she has a grandbaby on the way. Please take care of yourself and someday soon the good memories will help ease your pain. Hugs, Wanda
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Emily, I am so very sorry for your loss. I will say prayers for your mother, for you and your family. Peace to you all.
Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Emily - So very sorry to hear the sad news of your Mom's passing. I hope that you and our family will find comfort in each other and peace in the good memories of your Mom.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | Please except my condolences and you and your family are in our prayers.. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Emily I am so sorry for the loss of your mom. You and your family are in my prayers.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2006 Posts: 388 | Emily and family - we send along our sincere sympathy at the loss of your Mom - they are gifts to us but the good memories will live on until you meet again.
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Emily: I enjoyed knowing you for just a short while, and pray you and your family find peace in knowing your Mom isn't suffering any more and is smiling down on you. She will always be alive in your hearts and her memories will always be with you. God Bless. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2008 Posts: 475 | I am truly sorry for your loss Emily. My thoughts and prayers are with you and your family.
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | Joined: Aug 2008 Posts: 100 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2008 Posts: 100 | Although they are now beyond the reach of your arms, they will always be within the embrace of your never ending love.
Sorry for your loss.
Tom-CG to wife, Pam 46@dx Stage IV Tongue Cancer T2N2C Dx 6/08, Surgery 7/08, 3 nodes positive 9/08 33IMRT/7Carbo/Taxol 4/09 node biopsy positive, mets to lungs/stomach 5/09 Cisplatin or Cis/Alimta study 6/09 Cis/Taxotere 9/09 Taxotere 1/10 Xeloda 3/10 Cetuximab weekly 6/29/10 lost battle
| | | | Joined: May 2010 Posts: 37 "OCF Canuck" Contributing Member (25+ posts) | "OCF Canuck" Contributing Member (25+ posts) Joined: May 2010 Posts: 37 | Emily! I am so sorry to hear of your mother's passing. You are a wonderfull daughter & caregiver to your mother. I have followed all of your post's & it truly show's the love & care you gave your mother. My thought's & prayer's are with you at this time. Hugg's Roz
Stage 1V scc of toncil 12/1/09 Peg in 01/18/10 35 rads 3 cisplatin tx ended 03/02/10 | | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | Emily, I am so sorry for your loss. It is so hard to try to find words to console you. Just know that your mom loved you very much and having my own daughter, I know how much your care and support meant to your mom. I will keep you and your family in my prayers.
Take Care Wendy
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Here is the obituary for Emily's mother Freida. She was a wonderful person and will be greatly missed especially by Emily. http://obituaries.wilsontimes.com/freida-jane-baker ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Emily,
Although I never meet either you or your mother in person, I feel I got to know both of you through your posts here on OCF. I am deeply saddened to hear of your loss. I know you loved your mother deeply and rest assured she knew it also. Please accept my sincere condolences for your terrible loss. I will keep you and your family in my prayers.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 | Hi everyone - thanks for sharing that link christine. her facebook page is here, also. freidas facebook she was such a special person..i cant believe all of the people that were at her funeral. they all couldnt fit in the room..some had to sit in another room and watch the service on tv and others had to watch it on tv in the big atrium. it was so humbling. i cant believe she was my mom. she didnt meet a person that didnt fall in love with her. she was sincerely and genuinely nice to everyone she met..never met a stranger, as they say. some of her former students sang a beautiful song titled "hallelujah" but rewrote the words to say "Mrs. Baker, yes we knew your name Some bad news came yet you smiled the same you laughed and danced and joked. That's how we knew ya'! Now on today you've gone away left us with memories and great things to say with that we lift our voice and cry Hallelujah!" i still cant wrap my head around all of this..here today, gone tomorrow. my sweet mama. i cant imagine living my life and not sharing all of the details with her. im worried how this will all affect me in the coming days, now that the funeral is over and the people are gone. i thank you all again for always being there and knowing what to say! i know youve all been there and fought your own battles. this was a wonderful resource for me for many months..i wish i had found you guys sooner!
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | How terrible for that to happen. You have every sorrow I can muster as does your family.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2010 Posts: 135 | Oh Emily I am so sorry for the loss of your mother. What a shock. You are certainly in my thoughts and prayers. Let me know if you wanna talk.
Love ya
Dodie
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Emily, I am so sorry to hear of this news ... I am so terribly sorry. I know you and your Mom had a very special and unique relationship that is absolutely irreplacable. I would keep a journal and title each entry.. Dear Freida or Dear Mom, and just express your thoughts to her. It will help you get through this tough time... and maybe anytime you want to be in touch with her or feel close to her you could write her here. I cannot imagine the pain you must be feelings. She was a very special person to you and to all of the students she taught. I wish that she hadn't gotten sick with this terrible disease. Take good care of yourself because you have a precious baby with you and that is part of your Mom's legacy. In time you will be at peace with her passing - but it will take some time. Be good to yourself. KATE
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 | Hi all..thank u so much for thinking of me. tomorrow will make a week since her death. last week was a whilrwind of just going through the motions, it felt like it was only a day. these past 2 days have been the hardest for me, since all the activity with visitors has died down and i find myself alone. i talk to her all the time and ask for her to come to me..i just want to feel her presence but i have not. i pray every night i can at least dream about her but i havent. i keep telling her i dont even care if shes a scary looking ghost, i just want to see her. my work has been so great, they have told me to take 2 weeks (last week and this week). ive been at home and just cant seem to do anything. i have lots i could be doing in the nursery but i cant stop crying - everything reminds me of her. i know if she could, she would tell me to stop being 'foolish'.I just cant stop crying..I keep thinking about how she died and how scared she must have been. It was such a violent death. I keep envisioning her lying the bathroom and jsut bleeding out and I can see the look in her eyes I know she was so scared. I wonder if she was able to say anything to my stepdad or if she thought of me. I think this is mostly why I am so sad, not entirely for my loss, but because of how she had to die. It was not peaceful at all..I cant think of a worse thing to happen to her. I think passing slowly in hospice would have been better than this, at least we could have all had some time with her and we could have kissed her and held on to her. I think sometimes Im just waiting for this to be over and Ill be able to go see her at her house. I wish that I could feel her presence with me but I havent. Derek says its because Im looking for it. Every night I pray that I will dream about her and she will talk to me and shell tell me that we'll be together again. That scares me a lot..that after death there is nothing and I wont see her again. does anyone else ever feel the presence of a loved one that has died?
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | Hi Emily. This is all so soon and fresh. My mom will be gone 3 years next month and sometimes it feels like it was yesterday. She died from pancreatic cancer and unfortunately the last 2 weeks of her life were horrific. I would have nightmares daily of those last two weeks of her life dying at home. In time the good memories overtook those awful last two weeks. Her life was so much more than the way she died and I tried to remember that. Getting back to work helped to keep my mind occupied and that helped. Grief is something you have to go through and it is painful. I used to call my mom first thing in the morning when I got into work and found myself those first few weeks actually picking up the phone to call her and then catching myself. I used to call her house when I knew my dad was out of the house just to hear her voice on the answering machine. It is a very painful and tough thing to get through.
I do believe that we will eventually see our loved ones again. I wish there was something I could say or do to make things a little easier for you. Be thankful that you had such a close bond with your mom. You will eventually feel her presence with you and you will dream about her. Like I said, it's all so fresh. You are carrying a part of your mom with you always. I feel so honored that I am my mom's daughter and I know you feel the same way about your mom. Be patient and take care of yourself and your baby-to-be. Your mom will be with you always. Sending you a HUGE hug, Wanda
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
| | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | Oh, Emily, I am sorry. I am about your mom's age, and I have a daughter about your age -- and if I ever find myself in a situation like your mom's, I hope that my daughter will offer as much comfort and support to me as I know you did to your mom. My condolences to you and your family.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | Emily,
I sat here and read you every day with tears streaming down my cheeks. You're a wonderful daughter you did everything in your power to help your Mom. She appreciated everything you did for her. Take care of yourself and your baby your Mom will be with you in spirit.
My husband passed away 11 years ago he had throat cancer. Ironic this has happened to me too, but tongue cancer. Your Mom will make her presence in a strange way. The first year I felt him many times and had one dream about him. The last few days of his life he was at Hospice House they had a butterfly garden outside his window. After everything was said and done I was driving down a major highway a butterfly was trying to get into my driver side window, I freaked out and pulled over the side of the road hysterical. I thought of the butterflies outside of his window I would comment to him about them. Every once in a while a butterfly flies around my living room window and I think of my Bob.
Your husband might be right your thinking too much about receiving a message from her. You will give it time. I truly believe they are with us in spirit.
Take care of yourself and your family. God Bless
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Hi Emily- For some reason my message didn't post.
I'm so sorry to hear about your Mom. She sounded like a wonderful woman. You had a special bond that will never be broken. Keep a "Dear Frieda" Journal to work through this difficult time. It will help you feel close to her and also sort through your emotions.
She will be with you always. Stay strong and healthy for the new life you have forming. Her spirit will live on through this new child. You will see. My sister just had a baby a few months ago and I see my mom in her smile and her eyes. Its amazing! Be excited for that. I know its a very sad time but one day soon you won't feel so sad.
Lots of Love to you. KATE
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2005 Posts: 307 | Hi Emily,
I'm so sorry to hear about your Mom. I had the same very close relationship with my Mom so I can really feel your pain. For me the first year was the hardest. The first Thanksgiving, Christmas, Mother's Day, etc. without Mom. But it does get easier, it just takes time. That's part of the grieving process.
I believe your Mom will always watch over you. She is your guardian Angel now. A love that strong will never die. There are times when I can feel my Mom, I know she's with me. I bet that will happen in time with you too. I also got some grief counseling which helped me cope with her death. You might want to consider that option down the road.
Love and Hugs,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 | Hi everyone..cant believe its already been over a week. Feels like it still just happened. The hole in my heart is still just as big, I guess that will never heal. Im going to try to go back to work tomorrow. I know mom is pushing me along telling me to get back. She would never miss a day of work, even on her bad days. She loved to be at work..I remember during my teenage 'hellraising' years, she would tell me she couldnt wait to get back to work with her work family cause I was just driving her nuts. So many things have been published since shes passed. so many people have shared poems theyve written about her. There was an article in the newspaper today about how our school is mourning our loss (We worked at the same school). I think Ive gotten better each day, I didnt think Id be this strong. I thought I would completely die when she did. I love her so much..she must be pushing me along. I still feel very isolated and alone without her. Im left in a family FULL of men, aside from my mother in law. I feel like Ive been passed on the torch but I have no idea what to do with it. Like everyone will look at me to do the things she did, which Ill never compare to. Anyways Im not sure why I still come back here. I guess I feel a connection with you all as I know you truly know what Im going through. Id like to share something that was the closing at her funeral Resolution of Respect for Freida Jane Baker No matter what your trials are,or how big your mountain seems; The Lord is there to see youthrough; He'll go to all extremes. So if your cross seems hard tobear, and you know not what to do; The One who loves you most of allwill be there to see you through. We, the members of East Wake Academy,want the family to know that our hearts are with you as we gather to bid aheartfelt good-bye to a valiant woman, the wife of Leonard Baker, mother of Emily Eatmon and Sam Humphrey, mother-in-law of Derek Eatmon, and sister of Toni Boykin. WHEREAS,Freida Baker was a dedicated wife, mother, teacher, mentor and friend of East Wake Academy . WHEREAS,Freida Baker was a very independent person who would perform any task, whethermenial or mighty, and instilled in her family and friends to follow herexample. She inspired others with her selfless compassion and vibrant love forlife. WHEREAS, not only is this a loss of a devotedmother, but also a confident counselor and genuine friend. Freida was a personwho was always available to share an encouraging word and demonstrate unwaveringsupport to students, friends and loved ones. WHEREAS, the passing of our beloved Freida is thewill of God and there is a human tie that has been broken which bleeds theheart in agony and pain. We are encouraged and consoled in the words of Jesuswho said, "I will never leave thee nor forsake them". WHEREAS, we will always take delight and comfort inthe millions of memories and the brilliant smiles she always flashed ~ eventhrough adversity. Truly Freida was thewoman that the bible describes in Proverbs: She speaks with wisdom, and faithful instruction is on her tongue. She watches over the affairs of her householdand does not eat the bread of idleness. Her children arise and call her blessed;her husband also, and he praises her: "Many women do noble things, but you surpass them all." THEREFORE BE IT RESOLVED, that we embrace thefamily because all of us have a common bond that will connect us for the restof your lives. We can never replace Freida, but we will attempt to be aconduit of her amazing love and joyfulspirit. To the family, we know your loss is deep and your sorrow is great,but we want you to know that we share in your sorrow, but more importantly, werecognize that this loss is truly Heaven's Gain. When it is all over, we would like you to remember: In case there's a time when you just need some cheer, In case there's a problem you would like us to hear, In case there's a favor you would like us to do- We're here if you need us to help see you through. This is how I will remember her, before she got sick [img] http://sphotos.ak.fbcdn.net/hphotos...975535046_333501052_703233_2134242_n.jpg[/img]
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 |
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | What a beautiful tribute the school did for your mother. She was loved by so many. The picture is very nice, it shows a vibrant, happy woman, not a cancer patient. The little poem right before the picture is lovely. You are so lucky for this amazing person to have been your mother. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Emily,
First, you are always welcome here on this site. I hope you will continue to post. There are many of us who are looking forward to hearing about your baby. Next, I love the tribute and photo of your Mom. Third, I also checked out the FB page and enjoyed the photos there as well. Your Mom is beautiful! Thanks for sharing her with us.
Anita
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Aug 2010 Posts: 4 Member | Member Joined: Aug 2010 Posts: 4 | I am sorry for your lost. May you find the strength, during this time....
God Bless,
Living in Memory of the BEST GUY in the world...T. Walter Ross-Stage 3 Tongue and Mouth Cancer..DX 6/07-Went to Heaven 8/07-Miss him, EVERYDAY!
| | | | Joined: Aug 2010 Posts: 4 Member | Member Joined: Aug 2010 Posts: 4 | Emily, Believe me when I say that she is with you and watching over you. Yes, you do feel their presence. It's been three years for me, since Daddy died. I have talked to Daddy in too many places to name. One day, recently, I was having a horrible day and needed to talk to Daddy....and in my mind, heart and belief, he was right outside, sitting next to me, as I poured my heart out about the events in my life.
I notice a light in the sky from an star this night. It was as bright as ever and seem to be shining right on me, as I cried and cried. Then, I felt a small wind and what seemed like a arm, reach around my shoulder. I KNOW, it was Daddy, tell me "It is going to be OK".
So, yes..to answer your question, I believe they always watch out for you and are your guardian angel, for the remainder of your life on Earth.
I hope this helps! Take care and God Bless,
Living in Memory of the BEST GUY in the world...T. Walter Ross-Stage 3 Tongue and Mouth Cancer..DX 6/07-Went to Heaven 8/07-Miss him, EVERYDAY!
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Hello Emily:
I strongly agree with the others that your Mom was a beautiful woman and I'm sure she's now a beautiful Guardian Angel for you. Her memories will always be with you, and at times, you will "feel" her presence. I lost my son, and there have been times when I actually "smelled" how he smelled when he had just taken a shower, and I don't even use the same kind of soap he did. Just wait, you'll know what I'm talking about, I promise.
Julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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