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Joined: Feb 2007
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Great News!!! So glad she is responding to the chemo. Definitely allow yourself to feel happy. Glad your mom is coming home. smile XOXOXOXO K


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
Joined: Jun 2010
Posts: 111
EmilyE Offline OP
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Posts: 111
christine, she feels okay. shes not nauseous or feeling awful. just VERY tired. and she says she feels disconnected and forgetting things.
she couldnt belive she forgot i went back to work monday (we worked at the same school for a while)

from what ive read here this seems to be something that you dont fully recover from after chemo. is that right?


my mom, age 59.

12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
Joined: Jan 2009
Posts: 476
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Posts: 476
Hi Emily. I'm so happy to read this update on your mom. I'm so glad the chemo is "working" and that she will be able to come home soon. I don't know if "chemo brain" is permanent but John finished his chemo a year and a half ago and he still has it. smile Thanks for the update. Hugs to you.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
Joined: Sep 2009
Posts: 177
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Sep 2009
Posts: 177
Great news Emily!!! Thanks for keeping us up to date.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

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I never heard that a patient doesnt ever fully recover from chemo. I know it wasnt easy but it was necessary part of the treatment. My after effects are from radiation.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2009
Posts: 92
Supporting Member (50+ posts)
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Joined: Nov 2009
Posts: 92
EmilyE,

The hopeful news is that "chemo brain" is usually temporary. It is long term for only a very small percentage of chemo patients. Hope your mom is in with the majority. Do well.


44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
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