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| | Joined: Jul 2010 Posts: 60 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jul 2010 Posts: 60 | Thanks, David, I just had the PET scan today and was glad to get the music they provided, so I know bringing my to radiation treatments will give me a lift.
Susan/59/nonsmoker /tonsil cancer spread to tongue,stage III diagnosed 6/10, HPV+ T3,N1 Finished 35 radiation and 7 cisplatin 9/7/10.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I didn't mind the hot mask but the fingers making it conform to my face didn't feel the best. LOL like someone pinching my face and saying kitchee coo.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Susan,
I am glad your mask fitting went well. Like other posters have said listening to music can be helpful. I took my own CD's since my therapist provided a CD player for us. I think I listened to the same songs each time that way I new when it was almsost over each day. I also counted to the beams and each time the machine moved so I knew when I was almost done. Once I got a little more "comfortable" I was actually able to stay still and it did not take as long.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jul 2010 Posts: 60 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jul 2010 Posts: 60 | Thanks, Angie, I really appreciate all your advice, having been through this. I'm hoping my PET comes out clear like yours!
Susan/59/nonsmoker /tonsil cancer spread to tongue,stage III diagnosed 6/10, HPV+ T3,N1 Finished 35 radiation and 7 cisplatin 9/7/10.
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