| | Joined: May 2010 Posts: 224 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | oh yes forgot to say, everyone is different. Some people just sail right through with little to no side affects. I am very jealous of them. So hopefully you will be one of the ones I am jealous of, 
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | My RO would not start treatment without the PEG tube. I am so thankful I had it. I had a rougher time than most with the stupid treatments. Had to take a break after week three, because my throat was so bad it had swollen almost completely shut and could barely breathe. Then I was in the hospital for a few days. Not everyone has the side-effects, I think I had a rougher time during treatment, but healed up rather quickly after treatment. I quit using my PEg just 2 months after treatment. I would do what you want to do or what you are comfortable with.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2010 Posts: 1 Member | | Member
Joined: Jun 2010 Posts: 1 | Well here goes... I'm David and i'm in the last two weeks of my treatments for head and neck cancer. Discovered Marched 22, 2010 via a protruding lymph gland on left side of neck. It was removed, PET Scan showed another node deep and below the first one and some cells but no tumor at the base of tongue. I have my last chemo treatment tomorrow with 8 more RT to follow. In a few weeks i plan to travel to Long Beach, California for further treatment using radiation implant therapy and hyperthermia for one week. I hope this is the right way in introduce myself and i'm in the right place... I'm 53 and my goal is to beat this demon on my terms. Look forward to anyone getting back to me.
David F. Byrd
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | David, welcome to OCF. You will find lots of info not just on the forum but also on the main OCF pages, both areas have search functions.
Please start a new thread when you post unless responding to others posts. This way we can properly greet you and the original poster gets the attention their post deserves.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2010 Posts: 9 Member | | OP Member
Joined: May 2010 Posts: 9 | Hi Folks,
Sorry I haven't been on the past 2 weeks, as it turns out the internet server here was blocking this website (and a few others) inadvertently. After finally figuring out the problem was not with my computer, it was easily rectified.
I am almost at the 1/2 way point in my treatment: 3 weeks of 7 RAD is complete and the 2nd of 3 chemos is this week. So far so good. I have a little difficulty in swallowing, but can still eat 'soft foods' and have maintained my weight so far. The taste is off, but not too much. The dry mouth has not been too bad yet. I guess I don't have much to complain about for now. I think this week with the 2nd chemo boost will be a real test, after that I will be more than 1/2 way home and hope I will be feeling as good next week as I do this. Cheers.
Jimbo
5/21/2010 dx Stage IV BOT SCC T2 N2 M0
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | Congrats Jimbo on being almost 1/2 way through your treatments. Sure hope all continues to go well. Will be thinking of ya.
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
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