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#11824 08-20-2007 03:37 PM
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okay fellow members, as we Southern rednecks say: Let's "git 'er done!"

I realize that the majority of us may not be in a position financially to cure all of OCF's debts, but I firmly believe that if EACH of us would make a contribution, no matter how small, that it could certainly make a difference in the bottom line!

Let's inundate OCF with our donations! Just think where we might be today, if NOT for OCF!

--------------------
CG to 76 y/o hubby;06/06/07:Stage IV-A mandible SCC; 30+ yrs cigar smoker-quit 10 yrs ago; 30+ yrs: 1 beer/day; Wake Forest Baptist Hosp surgery: 07/19/07; bi resection
T2 N2-B M0
30 IMRT+5-6 Paclitaxel/Carboplatin asap


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11825 08-20-2007 04:57 PM
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We collected for OCF and the Hospice at Robs funeral.Just sent it off yesterday.I must admit the majority of people chose the Hospice to donate too because they are charity run and they know about the work they do,but still got


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#11826 08-20-2007 05:08 PM
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I plan on trying to raise money at the fair for the OCF !


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#11827 08-20-2007 06:04 PM
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Make a donation here.


http://www.wireplanet.com/ecom/stor...teg_id=7&parent_ids=0&Page_ID=17


Or ask for 10 donation envelelopes, and when you send those in, ask for and get more and send.

Always have some to hand to someone and say hey, send $10.00 and help save someone you may know!

Let


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
#11828 08-21-2007 01:00 AM
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sending today


paulie
#11829 08-21-2007 02:16 AM
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Will do....Petey--thanks for the link!

How are you????


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
#11830 08-21-2007 04:19 PM
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Just wanted to "bump" this forum to keep the subject open!


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11831 08-22-2007 11:55 AM
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...bump....


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11832 08-22-2007 12:06 PM
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sent mine yesterday


paulie
#11833 08-22-2007 03:31 PM
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As of today, there have been more than 4600 'members' on the forum...Just for the sake of argument, let's assume that the majority of these members have visited the site, found the info they were seeking and left, or fully recovered (hopefully) and no longer frequent OCF...By my 'guestimate' fewer than 100 of us are actively posting on a regular basis. If even 100 of us contribute a minimum of $25.00, that figure wouldn't be monumental...However, many of us COULD contribute more than a minimum amount; In addition, many of us could contribute on a REGULAR basis, thereby increasing the 'pot'.
I could not repay OCF in dollars for what it has given me! Peace of mind is PRICELESS!
Administrators state that a fundraiser is being planned; I, for one, have no need to wait until then. I will support OCF now, and I hope you will, as well!
God bless you all......Lois


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11834 08-22-2007 04:01 PM
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POSTED ON ANOTHER THREAD BY BRIAN HILL:
Some good ideas, and on the sign in besides this, I think I will also add that there are hundreds of pages of content on the main web site to search for things as well. You wouldn't believe how many times a week I get a call looking for the foundation's address, which if anyone looked at the web site, is in the about us link. The board is the smallest part of OCF operating costs, which I have to tell you is in the lowest 5% of ALL charities in the US. 94 cents of EVERY dollar that comes to OCF goes towards the cause services, and that does not included any G&A overhead expenses or fundraising efforts. Anyone can check the IRS 990 forms that we all have to fill out every year and see where the money goes and how much there is. In order to be a 501c3 charity you have to be completely transparent and the IRS sees to that if you are going to keep your charter.

We will be doing a major fundraising outreach in November. Every email address that we have, every previous donor, every mailing address will get a piece from us on what we do, what it costs, and how we cannot do it without their support. The purpose of my post was just to remind people that while it may feel good to go to a Relay for Life, it doesn


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11835 08-22-2007 04:02 PM
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POSTED ON ANOTHER THREAD BY BRIAN HILL:
Wouldn't it be nice if ACS did anything at all for oral cancer? Perhaps in Australia they do. Here in the US, they are great at many things, but oral cancer? Not so much. You know early detecton programs, free public screenings, funding research related to it specifically, spending money on raising public awareness, something more than refer 25+ people a week to OCF for things. I think everyone that has an opportunity to support organizations that are trying to bring down cancer should do so. If ony OCF were as good at fundrasing as ACS..... I mean they really have this down to a science, and the staff to do it. For a disease that isn't waiting on new science to bring it down from the high list of killers, what we could do with a fraction of ACS's one month's take. We are a thIrd of the way through this month and donations to OCF are at about $192.00. At this rate we'll be lucky to have the message board up in three months. Sorry for sounding bitter. All organizations are trying to do good in the world, big or small. But too many of the small ones survive less than 5 years. Not because they do not do good in the world, but because they represent a small disease, with fewer survivors than say breast cancer. Fewer people getting it and fewer survivors = fewer donors and fewer volunteers helping you to bring in the needed funding. Then they are gone.

--------------------
Brian, stage 3/4 oral cancer survivor. OCF Founder and Director. "The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant."


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11836 08-23-2007 02:05 AM
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I just became a member and will be donating, infact will be sending information to give to OCF. I am coming up with a fundraiser which I think will be a great event once all the the details are tied up.

I have a 30 year reunion coming up and maybe I can do something there. I'm not good at this stuff and I really want to do something. I feel the urgency but event planning, speaking, asking for money can be so intimidating. I guess one of the things I could do is ask Classmates.com permission to put something on the message board re: Oral Cancer Foundation and see what they say.

Petey has sent me wonderful information for my fundraiser. But as a member I know I need to do more. I can't see this website/message board folding. It's too valuable. This is scary and probably the exact "kick in the butt" I need to get me on the road.

"Keep OCF message board alive".


Donna; Age 50, dx w/ Stage 2, muco epidermoid carcinoma 4/07, maxiolectomy of the upper right palate 6/07, clear margins, no radiation or chemotherapy, close follow-ups.
#11837 09-02-2007 04:58 PM
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Today has been a sad day for all of us who loved Petey. Wouldn't it be wonderful if we could make donations to OCF in his memory?

I think Petey would be very pleased!


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11838 09-03-2007 01:16 AM
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Hi, I have been crying about Petey's passing and that is the LAST thing he would have wanted, the FIRST thing would have been donations to OCF!

I agree, let's get it going in memory of Petey!

Thanks, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#11839 09-03-2007 10:57 AM
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...just want to 'bump' this topic so that everyone can read updates.........thanks!


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11840 09-03-2007 04:05 PM
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What a truly wonderful memorial for our Petey......Christa & I are in!!!!


Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
#11841 09-03-2007 07:22 PM
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I made a donation tonight. Bless you Petey.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#11842 09-04-2007 02:36 AM
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I made my donation yesterday using the link Petey had posted. Rest in Peace, Petey, you fought the good fight my friend, .....Carol (AKA Crab Cakes)


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#11843 09-04-2007 07:40 AM
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Can anyone help me on making my donation in pounds sterling?????
I tried to do it before, just following the link at top of page, but got embroiled in 'carts and checkout and accounts'
If it needs my password (which I have no idea now what it is!---how do I get it back and get to make this donation---was disappointed not to do it before, but now, in Petey's memory, feel even more helpless!
Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#11844 09-04-2007 07:50 AM
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Hi Bren.I am starting to get worried cos there is no sign of the cheques i sent to America after Robins funeral being cashed in.I wonder if we cant donate in sterling as well.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#11845 09-04-2007 08:08 AM
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Hmmmmm....sounds like Brian might need to chip in here!

Glad I'm not the only one having problems, but obviously, Liz, for you it's a much bigger issue with the donations from Robin's funeral!

I'll check back in tomorrow at some point, but right now, am totally wiped, bloods and optician's today, hopefully finally chemo tomorrow, before I give myself a REAL rest.

Hope we get this one sorted, otherwise can get my daughter to make the donation from the US and I'll just transfer money to her.

Take care Liz, night for now,
Brenda x


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#11846 09-04-2007 04:12 PM
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Liz, wanted you to know that the postal system has eaten up most of the days since you mailed checks from the UK. They were deposited on 8/27 by OCF, and just today did the bank send a reconcillation of the conversion of pounds to dollars and notified us of the actual dollar amount of the 5 checks. OCF is always in need of funding for various projects, and my gratitude is sincere. However this is the manner in which we get our necessary funding that I find personally the most uncomfortable. I promise you that the money will be spent prudently and with purpose.

Because of the amount of fraud with international transactions over the internet, very few companies ( inculding OCF's store which is run by Wells Fargo Bank) will accept credit card money from non US sources. International money orders (in pounds sterling or whatever) sent by mail can be deposited into OCF's regular bank account.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#11847 09-04-2007 06:50 PM
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Thats brilliant news Brian and i am just sorry it wasnt more,but the nature of things made it so that most people donated to the hospice where Robin was cared for.
Do you have a facility for setting up a monthly donation by bank transfer,as we do in this country?
Most of our charities ask people to just send what they can afford evry month and all these small amounts add up i guess.I would like to set this up if it is possible perhaps you could post or e- mail me.

Thankyou for making this forum the invaluable asset it has been to me and thousands of others at a time when there seemed no where to turn and no one to talk to.

God Bless you

Liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#11848 09-04-2007 09:45 PM
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Thank you for the clarification Brian--I will get on to my daughter today to do it in a straightforward manner from the US!
Or at least I know I can do it with a regular cheque via the post.
Thanks, Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#11849 09-05-2007 10:12 AM
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made donation today in the link provided by Petey. God bless you Petey.

#11850 09-06-2007 03:52 AM
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I just heard of Petey's passing. He was pivotal in assisting me with a fundraiser. I just made a donation to OCF but plan now on doing something bigger with the fundraiser in his name. I'm just too sad.


Donna; Age 50, dx w/ Stage 2, muco epidermoid carcinoma 4/07, maxiolectomy of the upper right palate 6/07, clear margins, no radiation or chemotherapy, close follow-ups.
#11851 09-06-2007 03:52 AM
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I just heard of Petey's passing. He was pivotal in assisting me with a fundraiser. I just made a donation to OCF but plan now on doing something bigger with the fundraiser in his name. I'm just too sad.


Donna; Age 50, dx w/ Stage 2, muco epidermoid carcinoma 4/07, maxiolectomy of the upper right palate 6/07, clear margins, no radiation or chemotherapy, close follow-ups.
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