| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Like I do often I qualified that statement with "that I remember" and "but I'm sure there are some". Since I'm a Guy in Red now I am even more cautious about what I say or at least I try to be.
I haven't seen any statistics re starting with Carbo vs Cis but I'm reasonably confident that the overwhelming majority start with Cis.
I also wasn't posting a comment on chemo vs no chemo but since he has nodal involvement, again most would recommend concurrent chemo and I wouldn't compare the treatments of 1997 to what is practiced today. Hopefully they have gotten better! lol
I still stand by my comment/recommendation. If nothing else it's more logical to start with Cis with his tobacco history and switch if it causes a problem which is not a given to begin with but what is a given is that if they don't throw everything at his cancer now, certainly his recurrence chances increase.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | One reason they might be wanting to radiate his parotid is because of the extracapsular spread(spread out side of the lymph node). I had stage 3 SCC on the right posterior third of my tongue, they took the whole right side, did a hemiglossectomy. They got clear margins, but they also pulled 40 lymph nodes and found 1 lymph node positive of cancer, but mine didn't have the extracapsular spread, so mine was all contained in the lymph node. But the cancer in my lymph node looked completely different then the cancer in my tongue, so now they are suspecting parotid involvement.
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
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