| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
When you are in a medically induced coma, you are sleeping. You arent able to talk, dream, nothing. I was kept asleep for so long due to my first surgery not taking. It was awful, Im glad I was kept asleep. The docs used leeches and the skin died and turned black. I wish my children had not witnessed this. It must have been awful for them to see their mother in this state. Im so glad that part of my life is over and Im so much better now.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Christine, you will always be my hero as you have been and I love that happy spirit you bring to the forefront when you post.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 63 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 63 | Hello All
This is Pat's sister Roseanne. She had her surgery on the 13th and things went well. They took the bone from her right leg, that is in a cast, and took the skin from the outside of her right thigh. The plastic surgeon has been pleased with her progress. They took her out of the coma about 12 hrs after she came out of surgery. I've already gotten into it with the head and neck surgeon about feeding. She said she will "absolutely" NOT let her have her own food and she will not back down on this. That's what she thinks! We've allowed the crap in the can because they are using the excuse of inactive bowel so they are dripping it in very slowly but I'm about at my limit with this. So if anyone has any ideas on getting the bowel to wake up after anesthesia I would appreciate the input.
Pat has not looked at her face yet and I think that's a good thing. Mostly it is very swollen, inside and out but in two days I can already see a huge difference. The skin is drying out and starting to slough off and the Dr said that is expected.
I will update as things progress.
Pat - 62 yr. old -DX 8/29/09 SCC stage III floor of mouth
Lower teeth& bone removed
Port& Peg
Cisplatin x3; Rad 35 - ended 12/21/09
Fox Chase 2nd opinion-mandibulectomy; tracheotomy; left neck dissection; jaw reconstruction 5/13/10; flap failed;new flap 7/13/10; lipo January 2011
| | | | | Joined: Sep 2009 Posts: 63 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 63 | This is a test, I keep writing a post but it doesn't go.
Roseanne
Pat - 62 yr. old -DX 8/29/09 SCC stage III floor of mouth
Lower teeth& bone removed
Port& Peg
Cisplatin x3; Rad 35 - ended 12/21/09
Fox Chase 2nd opinion-mandibulectomy; tracheotomy; left neck dissection; jaw reconstruction 5/13/10; flap failed;new flap 7/13/10; lipo January 2011
| | | | | Joined: Sep 2009 Posts: 63 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 63 | Sorry I guess the first post was delayed.
Roseanne
Pat - 62 yr. old -DX 8/29/09 SCC stage III floor of mouth
Lower teeth& bone removed
Port& Peg
Cisplatin x3; Rad 35 - ended 12/21/09
Fox Chase 2nd opinion-mandibulectomy; tracheotomy; left neck dissection; jaw reconstruction 5/13/10; flap failed;new flap 7/13/10; lipo January 2011
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Roseanne, thank you for updating about your sisters operation. Its not an easy one at all, Ive had it done last year. Recovery can be a very long process. Please give her my best and let her know people are praying for her speedy recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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