| | Joined: May 2010 Posts: 9 Member | OP  Member
Joined: May 2010 Posts: 9 | I called a oral surgeon and made an appointment to get a biopsy done. Hoping he will just do it, I am really not interested in any other doctors opinions, I just want it tested. If he won't do it I will find one that will. The potatoe chip story was just too much like mine. I will let you all know, thanks for the encouragement. Mary | | | | | Joined: May 2010 Posts: 9 Member | | OP Member
Joined: May 2010 Posts: 9 | Went to the oral surgeon today and was told I have to be off the steroids for 2 weeks before taking a biopsy. They said the steroids suppress the white blood cells, and the biopsy would not show anything. He said he does not think it is cancer, but something is definately going on.
So I have an appointment for a biopsy in 2 weeks. | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Kelly, I have just reread your post from the 5th March that you are referring to. It really enforces the fact that you need to be vigilant and persistent.
Mary, you are wise to have the biopsy . It is the only way to know for sure. Best of luck with the results.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: May 2010 Posts: 9 Member | | OP Member
Joined: May 2010 Posts: 9 | Well, I got the results of my biopsy, it was done at UCLA Oral Pathology Lab. The CLINICAL DIAGNOSIS: ? So they don't know what it is either, but there is no evidence of malignancy.  "The microscopic findings have some features of, but not diagnostic for lichen planus" I was given a prescription for another steroid gel that is to sooth the lesion. I am hoping it does not continue to grow, and plan on watching it closely for any changes. Thanks for all of your support and help. Mary | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Great news Mary..you must be so relieved. A celebration is in order I think. Treat yourself with something nice 
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Mary,
What wonderful news. You deserve a celebration in your honor.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Mary
Congrats on the excellent news!!!!! So glad you have finally gotten the results and that they are not cancerous.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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