| | Joined: Apr 2010 Posts: 24 Member | OP  Member
Joined: Apr 2010 Posts: 24 | Tomorrow is the day I will officially join the rest of you in this battle. I have to be at the hospital at 5:30 to check-in for my 7:30 surgery. I am going to have a panendoscopy (they might as well take a look around), a partial glossectomy (the surgeons estimate is to remove around 10% to 15% of my tongue, but his firm estimate is until he has clear margins), and a modified Neck Dissection. To my surprise I am not very anxious�.. I have tried to read, watch and learn everything I could about my condition in the 3 weeks I have been waiting on the surgery and I think that is really helping keep the nerves at bay. I am sure that in the morning I may not feel the same and the nerves may creep up on me, but I have a 2mg Xanax with their name on it� that should do the trick. The Dr. has also given me permission to take a nap through the whole thing�. I seems like forever since I have had a 5 hour nap�
Tommy
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Moderately Differentiated
Evidence of Perinureal Invasion
Depth > 3 cm
Diag on: 03/25/2010
Partial Glossectomy and Modified Neck Disscection on 04/21/2010
Clear Margins/No Radiation or Chemo
Age 40
Former Smoker Quit 1/03/2010
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Good luck and we will be thinking of you while you nap.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2010 Posts: 24 Member | | OP Member
Joined: Apr 2010 Posts: 24 | Thanks David.... I want you to know how much I appreciate this site... I have learned so much... and it is great to see there are so many people willing to help others through this not so plesant situation...
Tommy
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Moderately Differentiated
Evidence of Perinureal Invasion
Depth > 3 cm
Diag on: 03/25/2010
Partial Glossectomy and Modified Neck Disscection on 04/21/2010
Clear Margins/No Radiation or Chemo
Age 40
Former Smoker Quit 1/03/2010
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Tommy,
All the best to you tomorrow. We'll be looking for an update from you when you feel ready. Good thoughts and prayers coming your way.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | I said a prayer for you and will continue through your surgery. You will be fine, we know.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Best of luck tomorrow. I will keep you in my prayers. Please update when you are able.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Wishing you all the very best for the surgery tomorrow and a speedy recovery.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Apr 2010 Posts: 5 Member | | Member
Joined: Apr 2010 Posts: 5 | We created a caringbridge site to update people. My appologies, I can't remember who's post directed us to the site, but thank you. It's a big relief to know that I don't have to repeat the same things individually to friends and family... http://www.caringbridge.org/visit/tommyrayfieldI think I'm more nervous than Tommy. It's 9 hours until we have to be at the hospital and he's playing Rockband on the xbox with one of our boys!
CG (wife) of TommyLee
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Evidence of Perinureal Invasion
Depth > 3 cm
diag: 03/25/2010
Partial Glossectomy and Modified Neck Disscection 04/22/2010
All clear - no rad - checks every 6 wks
Age 40
Former Smoker Quit 1/03/2010
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Good luck to tomorrow(to both of you). Sending warm thoughts your way...
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | your diagnoses sounds a lot like mine. I was diagnosed the same day. I had surgery april 13, 2010. I had stage 3 on the right lateral of my tongue, with perineural invasion, but mine was well differentiated, but I had a hemiglossectomy, right side neck dissection where they removed 40 lymph nodes. I am almost a month out of surgery. And I will have radiation starting in about a month.
If you would like to chat, just let me know.
Oh and I will keep you in my prayers and hope all goes well with your surgery, and that they get clean margins.
Last edited by bethers0808; 05-12-2010 08:30 PM.
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
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