| | Joined: Apr 2010 Posts: 5 Member |  Member
Joined: Apr 2010 Posts: 5 | Nancy - Tommy has already introduced me to the site and I have been "lurking" until now and have already found it a comfort. I have been reading threads through tears (both from laughing and crying I might add). My head is still spinning as I try to absorb all the information and come to terms with reality. It's all still sinking in and I'm still fighting with the self pity "why us" attitude so I'm not nearly to the place that Tommy is. I do, however, share his warped sense of humor by laughing at him walking around the house saying "I'm Cancer Boy" in his best super hero voice or using the Cancer boy excuse for accidently taking up two parking spots.
The site has already provided information and comfort and I expect that I will be lurking around quite a bit. Thanks to everyone for providing Tommy such a warm welcome.
CG (wife) of TommyLee
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Evidence of Perinureal Invasion
Depth > 3 cm
diag: 03/25/2010
Partial Glossectomy and Modified Neck Disscection 04/22/2010
All clear - no rad - checks every 6 wks
Age 40
Former Smoker Quit 1/03/2010
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Mich,
You don't have to lurk, There is a whole caregivers forum custom built just for you.
Tommylee certainly has the right attitude. Keep in touch, it will make the road easier for you I think.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | tommy and mich,
welcome. tommy, i love your attitude. yall are both in for a long hard road, no one on here will ever sugar coat anything. they will tell it like it is and offer tremendous amount of support. this site is a life-saver!! keep us updated!
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | Tommy,
as many here, I'm living a very similar story. It's a great place to find support, advice, resources and tons of information. I just wish we were all hanging out at a picnic and discussing something less dreadful.
Best of luck with your treatment, and don't shy away from asking anything, we've all been here, and we've all traveled the road you're about to embark upon. It's scary, it's not easy, physically or emotionally, but I thank god every day for coming across an amazing group of surgeons, oncologists, nurses, speech/swallow specialists, and support from family, friends, and people here.
One piece of advice - never turn down anyone's offers to help with anything.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
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