| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lisa, I doubt this will make you feel better but we have had posters as young as 23 get this cancer. Heck 4 years ago at 58 I was told I was a youngster so unfortunately times are changing.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Tommy (Cancer Boy) welcome to OCF. Im glad you have found this site to help you. You will find lots of guidance here to help get you thru whats coming up. There is also lots of important info on the main pages of OCF. Best wishes with everything.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2010 Posts: 24 Member | | OP Member
Joined: Apr 2010 Posts: 24 | David,
I did have a CT scan done. I have not seen the results as I will be going back to the Dr. in a few days. I asked the Dr. about the need for the ND and he explained to me while there is only a 30% chance (statistically) that it has spread to my Lymph Nodes he believes we should be agressive in the treatement, either ruling out (hopefully) or catching early any LN involvement. From everything I have read there seems to be a opinons for and against. I guess I would rather be aggrressive with the treatment and catch any LN involment early.
Thanks,
Tommy
Tommy
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Moderately Differentiated
Evidence of Perinureal Invasion
Depth > 3 cm
Diag on: 03/25/2010
Partial Glossectomy and Modified Neck Disscection on 04/21/2010
Clear Margins/No Radiation or Chemo
Age 40
Former Smoker Quit 1/03/2010
| | | | | Joined: Apr 2010 Posts: 24 Member | | OP Member
Joined: Apr 2010 Posts: 24 | Thanks to everyone for the supportive and welcoming comments... I am sure you will see me around for a long time... I definetly know where to come for questions/support/advice...
Thanks,
Tommy
Tommy
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Moderately Differentiated
Evidence of Perinureal Invasion
Depth > 3 cm
Diag on: 03/25/2010
Partial Glossectomy and Modified Neck Disscection on 04/21/2010
Clear Margins/No Radiation or Chemo
Age 40
Former Smoker Quit 1/03/2010
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I agree with your docotor get the neck dissection - check as many nodes as possible and be very aggressive with treatment. Far better to be safe than sorry! Glad to see you quit smoking - that isn't an easy thing to do but sooooooooo necessary for your ongoing good health. Remember NOPE. Not One Puff EVER. Keep us posted.
I know the waiting for the surgery and treatment to get going. Let us know if you have questions.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Welcome Tommy!
Sorry your here but it's a great group of people, ask any questions, someone is bound to know the answer.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Best of luck with the upcoming surgery Tommy. As you can see by my signature I had a similar procedure as have many others here. Feel free to ask as many questions as you like.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Welcome, Tommy - Cancer Boy! I'm sending good thoughts and prayers your way that once the surgery is done your family will not be able to use this name again...EVER! I found this site when my mother got oral cancer and it is such a wonderful place for information and encouragement/support. It's a great idea to introduce your wife to it as I'm sure she will get support and be able to ask anything that's on her mind. I'm a very positive person too and glad to see your attitude is sticking around. It will definitely come in handy so keep up the great work. Sounds like you've done a lot of homework and are comfortable with your doctors - that makes a big difference as well. Take care and B POSITIVE!!!
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Tommy,
It was great speaking with you the other day. It's terrific that you know as much as you do, before going into treatemnt. Many of us learned after treatment and it is much better this way. It is a big help to know what lies ahead and your positive attitude will certainly be a bonus.
Again, I wish you good luck on the 22nd and I am avialable anytime before or after your surgery if any questions pop up.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Hi Tommy,
Just wanted to welcome you to the site as well. I know this was great resource for me as I recovered from my encounter with oral cancer. I too was stage one SCC on the left lateral tongue and had similar treatment. For me, since the tumor was very early, the partial glossectomy was enough. I'm three years out and all clear. Best of luck on your journey, may it go as well.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
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