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| Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2008 Posts: 238 | I'm glad you learned of this website so you can share it with your brother. There are many supporters here to help. I'm also glad you asked your questions because Charm's reply helped me. My mother has had her PEG in for almost a year now - nothing by mouth. She uses the syringe w/Jevity but uses it at home before/after an outing. I wonder sometimes if she will ever be able to eat/drink again. I will keep your brother in my prayers that this will be a temporary set back for him! Take care.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11. | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | The swallowing isn't anything rare. A lot of us have had this problem. I have more trouble everyday and have to force a swallow even for water but it is a necessity to live. I have lost another 8 lbs this past week after regaining it the week and a half before. You are a great brother to take care of his needs as you do. Good luck to both of you. I have no peg either but by a bad choice so it is my fault and mine alone.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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