| | Joined: Feb 2010 Posts: 28 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 28 | Hi all,
To cut a long story short it's benign....thank goodness.The past few weeks have been an absolute nightmare and everybody who's replied to my posts I can't thank you enough you have helped me more than you will " ever " realise.
Basically it was a capillary haemangioma and the surgeon has said he does not need to remove the lump either.
If there's one thing I've learnt from this forum is I now have an awareness of oral cancer which I was blind to before and will pass my knowledge on to friends and family.
Good luck with all your journeys and you will always be in my thoughts and prayers.
Love you all,
David.
Mri on pituitary - incidental mid line tongue lesion found
Referred to ENT surgeon
Suspects Lingual Thyroid sent for 123 iodine scan - said dont need surgery or biopsy.
Follow up:Not a lingual thyroid, now have to have a tongue biopsy on Monday 15th March 2010.
Get the results Monday 30th March 2010
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Whoopee!!! Go celebrate. We love good news.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Yeeeee-ha! Great news David, celebration is in order! Take Care!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Glad to see you go. And don't come back, unless its just to say Hi.
Great news
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Whoo hoo..........HAPPY DANCE - HAPPY DANCE!!! How wonderful for you and glad to hear that you will be spreading the word about oral cancer! Great news.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Feb 2010 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 28 | Hi Donna,
I certainly will! Even though I got the all clear it's something that won't discriminate and will always be on my guard from now on and spread the word.
Dave.
Mri on pituitary - incidental mid line tongue lesion found
Referred to ENT surgeon
Suspects Lingual Thyroid sent for 123 iodine scan - said dont need surgery or biopsy.
Follow up:Not a lingual thyroid, now have to have a tongue biopsy on Monday 15th March 2010.
Get the results Monday 30th March 2010
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | You just made my day with the all clear post David. Keep up the good work and take off the gloves. Whip it bare knuckled.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Congratulations Dave...great news!
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Feb 2010 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 28 | Even though I've been given the all clear I know what it feels like to have a biopsy and wait for the results.If I can help anybody else go through the same thing I will do.I would say from start to finish it went on for about two months which was a living nightmare from start to finish.
Hope everybody is staying strong!!!
Dave.
Mri on pituitary - incidental mid line tongue lesion found
Referred to ENT surgeon
Suspects Lingual Thyroid sent for 123 iodine scan - said dont need surgery or biopsy.
Follow up:Not a lingual thyroid, now have to have a tongue biopsy on Monday 15th March 2010.
Get the results Monday 30th March 2010
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Dsvid: Question for you: You had to wait a long time for your all clear. In order to help all of us help others, was there something someone said or did, or was there some particular advice that helped you cope with the long wait? I am very curious about your reply as although I have gone through HELL (aka wait times), I am not sure how I did it, nor am I sure how to help others. Any suggestions?
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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