| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Rose,
Eat as much as you can now. Eat all your favorite things, the fattier the better and I don't care what you weight!
Once the rad and chemo begin your life will really change for about 2 to 3 months and after that you will get back to a new normal.
We can all react differently so don't judge yourself to much by what you are told by your doctors and nurses.
Keep on top of the pain.
Most importantly set a goal each day for calories and water and stick to it. Also keep swallowing every day, don't ever not ask any question and lastly keep posting here every day and believe me we will get you through this.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Rose, as David said, eat now and try to gain a few pounds. You will lose weight and fast it seems. Drink water until you float too as you will need it and it will help with the swallowing .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2010 Posts: 5 Member | | Member
Joined: Mar 2010 Posts: 5 | Hi everyone, My name is lori. or you can call me lorilou I like the name it's cute
Don't know why it took me so long to find you guys,sure glad I did.I was diagnosed Mar.2009.cancer of the larynx and a and in lymph node stage 1 I feel your pain rose10 if I can be any help to you Please let me know.This web site is the great.Everywhere I look it's been like looking in a mirror, Of what I've been going threw the past year.So everyone here has great advice.I've had the radiation and chemo.They gave me a high dose Cispatin every three weeks.For the sake of your Larynx Please try hard give up smoking.I couldn't and it looks like I might lose mine.I have another Biopsy this Monday along with taking out my peg tube.I'll let you know the results when they come in. If I misspelled any words sorry I'm not a good speller | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Lori,
You should start your own thread to introduce yourself. It's hard for people to find you in someone else's thread and the posts get all intertwined.
Good luck with the biopsy and the peg removal.
In any case....welcome.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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