Hello,
My names David from the UK and wondered if anybody can help me.I had a scan on my pituitary gland that showed up a mid line tongue lesion on my tongue.I saw the ear,nose and throat surgeon who said he doesn't think it's cancerous going off the MRI scan and said I won't need a biopsy or surgery because he said he thinks it was a lingual thyroid but said I need a 123 iodine whole body scan to find out what type of lump it is.
Had the scan and to cut a long story short the person that did the scan said it's not a lingual thyroid and said after the scan we've just been discussing about you having a biopsy.
I'm just worried sick now thinking if it's not a lingual thyroid what is it??
Wondered if anybody could help because i go for the results tomorrow and haven't told my parents?

Thanks for reading,

David.

Tell the idiot Dr to do a biopsy and stop thinking. An MRI can't tell him if it's cancer, only a biopsy can do that...if he won't go RUNNING to one that does.

It isn't cancer until a biopsy says it is, but I'd hate to be wrong in this case...Dr's are fallible and this one sounds like he needs an good smack upside the head. He doesn't "think" it's cancer, I pray he's right but I wouldn't trust his opinion without a biopsy.

Be calm and know...it's not cancer until a biopsy says it is.

Eric

Hi Eric,
Thanks for your post I'm very grateful.What you've said makes total sense to me.I think that's what the next step is going to be.
I'll keep you posted and thanks again.

Dave.

Hey David,

FYI: a biopsy is a simple procedure that these folks can do in a few minutes right in the office. It's just painful enough to be annoying for a few days and thats about it. The worst part I found was the waiting for a result, which can take all of 10 days but at least 72 hours from what i was told.

Kelly

Hi Kelly,
I think this will be the next step.He did say it's at the base of my tongue and is deep inside so hopefully if they do a biopsy he may do it when I'm asleep??

welcome david.
keep us posted on the biopsy results.

welcome david. I have had quite a few biopsies and most don't hurt after a few hours. In the tender areas the pain might last for a day or two. LIke Eric says, kick that Dr square in his ass and you might find his brain located there. Get a biopsy and find out for sure if its OC. It;s the only way to fly.

David,

They put me under to bio my BOT. Actually I went to sleep thinking they were also going to remove my tonsils but they stopped after getting a positive on my BOT. Anyway it was like a really bad sore throat for a couple of days.

Hi All,
Saw the consultant today who was really nice and immediately said we are going to do a biopsy in two places while you are asleep.So have to go in for the day.
He said he will do it in the next two to three weeks.I asked if he could speed the process up with being so stressed about it so hopefully he will take it on board.
I do feel confident in his abilities.I've been reading up on lingual thyroids and there is a method in his madness.It says if a lingual thyroid is suspected first don't do a biopsy until it has been ruled out which is whats happened.
Thanks for all your replys I'm very grateful and this forum is a great help.
Hope everybody else is ok,

Best Wishes to you all,

David.

Hi there,
I forgot to add he said he still doesn't think it's cancerous but needs to do the biopsy to be sure.My question to everybody is what would the 123 Iodine Whole Body scan and MRI scan of my neck and head of shown up because he initially thought it was a lingual thyroid??
The other thing I'm thinking is he said he will do the biopsy in two to three weeks so am thinking he would of done it sooner if he was worried?
The worrying about it all is making me feel really ill and I keep forgetting things and my memorys like a sieve.
I haven't told my parents because I don't want to worry them because they are elderly and have not got good health either.
I know I have to cope with all the uncertainty but how do you do it? I've tried keeping busy and ringing friends but the thoughts always in my head bashing away at me.....aaaarrrrggghhhh!!!