| Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | yep...we see the light...and it is getting brighter!! andy GOT OUT OF BED and came into the living room and sat with me to watch some tv. it only lasted an hour and he returned to bed but he hasnt been out of bed besides treatments since new years! AND he ate some mashed potatoes. NEVER thought i would get excited about andy getting out of bed for an hour and eating mashed potatoes but i cant contain myself! i dont know what march will bring but february is definately getting better! he is 8 days out since treatment stopped. still having alot of complications but i do see improvements. thank u all for letting me share my little moment of joy!
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | It will get better with every passing week!
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | That's what we call "walking out of that dark Tunnel".
Remember he will continue to have many bad days mixed in with some good days but slowly and I do mean slowly those bad days will go away. He will also be weak as a kitten possibly for months. It's very critical for him to pump those calories in now and at least for the next year. I tried to get 3000 down a day and I seemed to feel better when I did. There's a ton of repair going on both physical and mental.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | well, since he has had alot of ONLY bad days here lately, a good day mixed in is a joy! and calories, calories, calories...i have fought so long and hard with him on this that he finally just gave in and he doesnt give me any trouble when i pump those calories down him now. maybe it was the "remote" thing
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2010 Posts: 235 | Theresa, your posts make me laugh. That sense of humor has to be a huge help through this. I'm so glad to hear that you are coming out of the tunnel. Had to laugh at the calorie thing too. Been nagging Dave since he needs to put on weight. His appetite is really good but his mouth is sore from the biopsy. We are trying to come up with stuff that he can eat that doesn't hurt.
By the end of this will I need to join nagging anonymous???
CG to Spouse BOT, Chemo and radiation started on March 29,2010 Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | So glad to hear Andy is starting to emerge from his tunnel. It's a wonderful moment when that happens. I remember Steve after treatment ended sitting out the back in the sun. He would be staring off into his own little world and nothing could get through what seemed like a trance. But one day I had the stereo on and Robbie Williams Rock DJ came on. I was standing at the back door, just watching Steve because I knew he loved this song. Then the moment came. He slowly turned his head and his thumb went up. He wanted me to turn it up. The trance was broken. That was the beginning of him emerging from his tunnel. A moment, memory I will never forget. Thinking of you and Andy always. Glad he has finally given in with the calories. When are these men ever going to learn that we wives know better lol. They could save themselves so much nagging if they just did as they were told in the beginning
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | amen sisters! but nagging is a term for normal circumstances...i refer to it as caregiving now thank u for the well wishes! it means alot!
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Jan 2010 Posts: 13 Member | Member Joined: Jan 2010 Posts: 13 | Teresa - So happy to hear that. Enjoy the good moments. I'm hoping you and Andy have a lot more! Blessings, Shelly
Caregiver/wife to Mike, age 48 used chewing tobacco - quit SCC BOT T2N3M0 Diagnosed Dec 29, 09 HPV+ L ND Jan 7 removed 31 nodes, 6 positive Bilat mets neck Siteman Cancer Center Port in Jan 27, Peg in Mar 3 IC 28 Jan & 18 Feb - TPF CRT Cisplatin x3 start March 10th
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