| | Joined: Feb 2010 Posts: 38 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 38 | I, too remember the sting of the biopsy, and the torture of the second one. I recall driving home and the anesthetic wearing off, and the promise to any higher power listening, that I would do anything to make the pain stop. I finally pulled over, popped two advil and rocked in my seat for 10 minutes.
That's when I decided that the rest of the treatment will not ever be as bad as that, and so far, It's good. I will take whatever life throws at me, one day at a time!
Barb
Teacher aged 48, SCC Left side and floor of Tongue, Dx December, 2009. Stage II T2 N0 M0 Successful partial glossectomy surgery with thigh flap and neck dissection 3/8/10. 6 weeks of radiation tx ended 6/30/10. Happily surviving!
"Get outside every day. Miracles are waiting everywhere."
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Barb,
My only advice is to eat all your favorite foods now and often until the day of surgery and don't worry about fat or calories. Have a pizza for breakfast if you want to.
BTW I got 5 opinions before I settled on my Tx. Not saying that's what you should do but not saying you shouldn't get another one or two either. Just consider it.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2009 Posts: 11 Member | | Member
Joined: Oct 2009 Posts: 11 | Hi Barb,
Welcome aboard here you will find your are not alone, you will find advice..(from everyone)
But I'm alittle concern for you, you said your not eatting. I recommend you get all the calories you can right now before your surgery and treatments...If you lose to much weight they will place peg tube in belly. Try eatting high calorie foods, force your self.
While are they taking so long to do your surgery and your testes??
Isabel
37/female dx:1/15/08 SSC patial glossectomy of tongue and 7 lyphm nodes removed...6 weeks of radiation...
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | JUst eat until it feels like it might come up all over you nice clean floor.LOL Floors can be cleaned but this weight sure as heck is hard to put back on. My highest weight from 220lbs is now at 164. m I weighed 174 when I turned 17 and was a senior in high school ready to graduate, so I will settle for the 174 again. Life can be tough Barb, but you will beat this . Tell hubby to enjoy his secong honeymoon like the one 18 yrs ago. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Hi Barb,
Sorry you have to join our little group. I agree with the others and eat, eat, eat! Anything your little heart desires. I wish I had listen to them a little bit more on that, I lost a ton of weight.
Welcome and know that we are here for you!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | welcome barb...and happy birthday.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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