 
#11156 07-13-2007 02:18 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Got my Biotene package yesterday, oh my gosh! It is soooo full of wonderful products, Thank you to Brian and Dale.
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#11157 07-13-2007 06:46 AM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Thank you! Thank you! Thank you!
The package arrived today. So many good things in it! Dad is looking forward to trying them out.
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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#11158 07-13-2007 08:57 AM | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Hi Brain and Dave,
Recieved the package today. Thank you both for the items and keeeping all imformed about these great products.
Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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#11159 07-13-2007 04:37 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Thank you Brian and Dale: What a wonderful surprise to open the package and inspect all the FULL-SIZE products enclosed! How kind of you to include all of us in your project. I, too, expected 'trial-size' containers. Buzz is already using the mouth wash and toothpaste, as he claims our Mentadent and Listerine burns his cancer-ridden mouth so much. THANK YOU so very much! I'm sure we will purchase these products in the future and will also refer them to other patients we expect to meet during Buzz' treatment! Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#11160 07-14-2007 12:34 AM | Joined: Jun 2007 Posts: 6 Member | | Member
Joined: Jun 2007 Posts: 6 | I sent an email about a month ago, with my address. To date have not received anything. I went and bought the mouthwash and toothpaste for my significant other. maybe it's on the way. He has 2 weeks of radiation left. | | |
#11161 07-14-2007 04:50 PM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thank you, I sent my email.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
#11162 07-16-2007 02:40 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Thanks so much for the info Brian. I received my package the other day. I also was surprised at the amount of things inside. I already use their products so it will be interesting to test the new ones they want us to try. I haven't found any other products out there that don't sting or burn my mouth, and I'm one yr. out of treatment. Was surprised to see they make a toothbrush. I haven't run across those in any stores that I go to. I do find extra soft ones from different companies though. Have a great day Linda
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#11163 07-17-2007 07:55 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | My care package also arrived...WOW. Thanks to Biotene; this was very unexpected, and I'm very grateful. Looking at all of the goodies, and having used many of them at Canadian pricing, there's nearly $100. worth of products. Heck the postage alone is over $20.!
I'm VERY impressed and pleased that even those of us in the great white North (AKA Canada) can be a part of this
THANK YOU!
VERY MUCH!!
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#11164 07-18-2007 04:20 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | They now have enough names to do their survey from. Expect to get questionaires in the next week or so with samples of the new products. This is now closed for new people. Thank you everyone for helpin out.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#11165 07-19-2007 07:44 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | Rcieved a huge package of items from BIotene today. Letter stated the new products they have will be coming soon. This was alot of product. Glad to have the gel. David had already used it especially at night it really helps with the dry ness.
What a great opportunity for all
Caregiver in Florida
DX tonsil cancer 4/13/07 both tonsils removed both positive.,. Stage 4 with 3 nodes on Right and 2 nodes on left. Just finishd 2 chemo - cisplatn and 35 Radiation 6/22/07
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