| | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Jude,
Great to hear! I always hate when my PET comes due and then waiting on pins and needles for the results. It's easy to say "don't worry" and hard to do it...but really just help her get it out of her mind and trust her Dr.
Jude...it's ok for you to do the same too...and breath again.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | heres to hoping the MRI will ease ur worries.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I am happy to read that the Doctor is convinced that it is not cancer but has organised the MRI in any case. Even after all my requests I have never had an MRI, CT or PET.
My doctors tell me that it is not necessary!
Even for peace of mind it will be good for your daughter to have the MRI.
Best wishes for the outcome of the test.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jan 2010 Posts: 8 Member | | OP Member
Joined: Jan 2010 Posts: 8 | We are blessed with an amazing surgeon. He said he didn't think an MRI was necessary, and i asked him what he would do if it was his daughter, and he said he wouldn't do the MRI as he is confident it is scar tissue and the feeling slowly coming back into her tongue. But he also accepted she's a scared young Mum, and he could see he could use it as a measuring stick in the future, so said let's do it.
Funny isn't it how she was scared it was the cancer back, now she's been told it's not, she's still frightened as worried it will show up something else. As I said to her, others worry about their health and they've not had what she's had, so perfectly normal to be fearful, as it's still early days for her.
As a matter of interest to others, a friend's Dad had oral cancer 3 times, started on the roof of his mouth, and the last time was 34 years ago! He's now 74 and in great health.
Thankyou again for all your help, and I might post on the caregiver forum, and also a question about recovery. This has been wonderful to find you even if I don't visit often, although i should as I think how wonderful it would have been to have found this when she was going through her biopsy and diagnosis.Maybe I can help someone else.
Jude
mother of 33 yr old diagnosed with oral cancer - tongue - Nov 2008. Light smoker. Surgery 18 Dec 2008 - lasered base of tongue and got good clearance. Removed part of tongue itself.
No lymph nodes affected as caught early. Held off on radiation. Recovering well, taking scares in her stride.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Jude,
Like your daughter I also have 2 small children and was diagnosed when I was 31 and then again at 32. She is not alone in this. I am so glad that the Dr. did not find anything to worry about. Yes an MRI will give you peace of mind. Good luck and I am sure it will come back clean.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Man that is good news and I hope there is a smile a mile wide on her face now. Congrats.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2010 Posts: 8 Member | | OP Member
Joined: Jan 2010 Posts: 8 | She certainly was extremely relieved. I'll let you know when the MRI is done, no date set for that yet.
Thanks Angelia, no she's not alone in this, but I suspect for most of you even with wonderful family support, there must be those times when you do feel one. Having the little ones is a double edged sword, it's why you have to fight and keep going, but it's also why she fears having this darned awful disease. But she's here and doing okay so we count our blessings. Hugs to you all as each one of you goes about your individual jouney.
Jude
mother of 33 yr old diagnosed with oral cancer - tongue - Nov 2008. Light smoker. Surgery 18 Dec 2008 - lasered base of tongue and got good clearance. Removed part of tongue itself.
No lymph nodes affected as caught early. Held off on radiation. Recovering well, taking scares in her stride.
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