#11048 06-27-2007 03:31 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I go to my dr again tomorrow to scheduele by biopsy ..but I would love to come to florida !! Of course on better terms ..but hey maybe I can truley make it down for a bit if things go ok ..One never knows and this would do good for me to help someone else !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#11049 06-28-2007 12:45 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | Hmmm-- it is the *radiation* that causes the most problems, both logistically (1x or even 2x a day for weeks) and medically with side-effects (you know what they are!). My husband said that the concurrent chemo he got (7x carboplatin) was "a piece of cake" and he never turned a hair. It was the radiation that really socked him. Certainly Moffitt could give Ed this chemo drug, which is the least toxic of the commonly-used drugs, and a low dose given once a week presents the least problem with nausea etc.
I am surprised that Moffitt does not have better social services, maybe they do and Ed just hasn't gotten to them yet. In any case, it is the radiation that requires the most oversight and a CG to make sure that meds are taken, pain relief etc. is obtained when needed, and that hydration and nutrition are kept up.
I think calling ACS is the first step...they helped my mother a great deal with transport etc. when she was under treatment for leukemia.
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#11050 07-21-2007 08:01 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | David - just wondering what's new with Ed? Been a while since we've heard.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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