| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I got 5 opinions. First one said No ND, 2nd one said YES ND, 3rd one said Radical ND, 4th one said Partial ND and finally #5, Moffitt, said NO ND and oddly enough they gave me the highest % chance of survival which really doesn't mean anything but it was curious.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 11 Member | | Member
Joined: Jan 2009 Posts: 11 | Hi Chelsea, Feel free to email me with any questions at [email protected]I was diagnosed at at the age of 25 in Sept 2008. I'm still fighting this thing, but I have been through much of what you will have to go through, and I'd be happy to share as many words of advice, encouragement, and knowledge as I can. I wish you the best through all of this and please track me down if you'd like to talk, Kristen
26 yo Med student: 9/26/08- biopsy diagnose SCC on rt side of tongue
10/08/08- partial glossectomy and rt sided neck dissection removing 42 nodes, one of which positive for SCC
11/10/08- 7 wks of 33x IMRT, wkly cisplatin and wkly erbitux tx
12/26/08- last day of radiation.
8/5/09- uh oh...
| | | | | Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 148 Likes: 1 | Hi Chelsey Honey, I have a 21 yr. old daughter, so I feel very "motherly" toward you. I am so sorry for you to be burdend with this @ such a young age. It will cause you to have to deal w/such grown up issues. You Can Do It. Take 1 day @ a time. You (in no time flat) will be feeling better, healing & getting your old life back. During around the 5th week of radiation, I wrote my dr. a note, saying " can't do this anymore" She ever so sweetly reminded me of her warning, that treatments are not easy. I pressed on. I am fine. Not the same, but here to talk about it! And so will you! You will look back on these days that call for courage, and take pride in your accomplishment! All my best to you sweetie. I have not stopped thinking about you since I first read your introduction. My every thought of you, is also a prayer for you. Press On.
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | i have children ur age as well and couldnt imagine them having to go thru this. as dianne stated, it is awful u are burdened with this at ur age.
i feel for u and will be praying for u. but u can get thru this.
Teresa
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CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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