| Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I do have Zofran, but nausea is not my big problem. The stupid gagging from the swollen throat is my problem. When I do the chemo I use the Zofran about once or twice and it does a great job at getting rid of the nausea from the chemo.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | the fentynol patch dials up more than what u are on. i think they just have to start u out at 25, to see if u can tolerate it. let the RO know it isnt cutting it, hopefully he will give u a stronger dose.
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | Take the Zofran. John's nausea was more from the mucus than the chemo. He didn't talk for a month beause everytime he tried the mucus gagged him and he would throw up. Can't hurt to try. Hang in there, the end is in sight!
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Well, had two Dr.s in the office today. I must have looked pretty bad this morning. Did not sleep a wink last night and they said my pulse rate was too low. Anyway, I am now on 50mg of fentanyl and they are getting me a fedding pump for night time because my RO said that I am not getting enough nutrition and losing too much weight. They threatened to put me in the hospital if I lose any mroe weight. We are going to try and push through the week as he changing part of the treatment regime. He is now going to be radiateing right on my throat anymore and is now going to be focusing mainly where the cancer was/is for the remainder of the treatments. So maybe some relief is in site. I did break down and start crying when the first Dr, came in to see me today. He knew I was not feeling well, because normally we joke around about stuff, but today I was just feeling awful. I am to the point that i can not swallow anything without pain. The patch has taken away the constant pain, now I need to work on getting rid the swallowing pain. I did get my hearing checked yesterday and I have slight change in my right ear, but I do not think it will be enough to discontinue chemo all together. I will have another test when I am completely finished with treatments.
Last edited by walknlite; 01-12-2010 12:00 PM. Reason: typo
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Angelia,
Your getting there. Not much further now. I noticed at this stage I liked the fact that my radiation treatments went faster as the area they hit was smaller. I also had the liquid hydracodone that I could take a few times a day. I gave that about 20 min. to work and then would load up on hydration and ensure plus.
Keep the faith, your closer to the end then the start. As a pilot we call this the point of no return. It means you might as well finish as its a further trip back to the start then making it to your destination.
Good Luck.
Kelly
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Kelly makes a great point. I was on liquid oxycodone for breakthrough pain. It absorbs faster buccally (by mouth) however if it hurts too much to swallow then it's easy to shoot it through the tube. It's fast acting either way and didn't taste bad to boot. It's easy to miss your dosage with the liquid stuff so make sure you follow directions.
Hang in there sport, you're almost there.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Nov 2009 Posts: 212 | Hi Angelia, I passed on the liquid oxyie and went to liquid morphine. It was almost instant relief from the breakthrough pain. It tasted like crap so I always used the PEG. In the end I was on Both Fentynal and 30 cc of Morphine per day. I was very comphie most of the time.I was a bit afraid of so much pain meds but I am glad I had them. Was fairly easy to get off too, maybe took ne a month or 6 weeks to step down to zero.
You are very close to the end! Keep hydrating!
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I had both of those too and they did help along with percocet . I am so sorry you are still having this bad pain and hope the patches take care of it and you get some rest and some food in you..You can do it and hopefully one day soon you will post the pain and nausea are almost or completely gone..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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