| | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Angelia,
They told me to take the liquid lortab orally and let it soak in under my tongue. You just hold it there for a minute. They said it goes to work faster that way.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I could try that, but I have this thing that every thing tastes bad and it makes me sick to my sotmach. I did put in the PEG tube about 11:00 and I was asleep by 11:30. Slept until 2:00. I think it worked going through the PEG.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Steve,
Have you had your TSH levels checked recently? A few of us develop hypothyroidism due to radiation damage and feeling cold all the time is a symptom.
Angelia,
I know it's tough to swallow when things taste bad but hold your nose and swallow away as long as you can. I got to the point that I would have to pinch my nose, close my eyes and also hold my mouth shut as soon as I finished swallowing a can of VHC while standing over the bathroom sink trying to stop me from tossing my cookies cause if you think it hurts going down.....it's hurts far worse coming back up.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | Hello David,
I brought it up with the Doc, he said we will test them in Jan. His reasoning is that the hypoth. occours several montha post TX. But! I am feeling exceptional good these days 14 weeks post. I have a large persenrage of my energy back and plan to ride this weekend. Still weak due to mucsle mass loss. From reading all the posts I know I am on schedule, I was way too optomistic at first.
Angela,
I was on liquid morphine for months and 99% of the time just shot down the PED. I tried once in my mouth and it tasted discusting, Even when I was eating soft foods I would use the PEG for Morphine.
Our Butts get whupped enough from the tx! I took the east path when I could. There are no awards for doing things the hard way!
PEGS away!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Steve,
14 weeks is months and mine had crapped out by the time I was tested 4 months post Tx so that's just about the same time as you are now. Anyway getting tested in Jan (hopefully early Jan) is OK and then you will be in the same boat as the rest of us in trying to figure out what TSH level is normal for YOU.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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