| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Wayne, Nice to hear from you again even if the news about Stanley is not good. Did he ever get the Peg? I also had a very rough time with nausea which I think was more about the chemo, Cisplatin, than the rad but they didn't want to stop the chemo. That was also before recent favorable studies about HPV+ SCC. Did he ever get tested for HPV?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey wayne
so good to see your handle back on the boards again.Life goes on though and it never seems to get any easier does it.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | All,
An overdue update on Stanley. So far: he's finished week four of rads. He's suffering from all of those wonderful side effects we've each endured; burns, loss of taste, pain...over and over and over again. He struggled with both rounds of chemo, initially decided not to have a third however he had a change of heart. His doctors determined last week that a third round of chemo was not warranted, so that was good news. He's a long way from being "well", but there is a faint light at the end of that long, dark "treatment tunnel".
On another front, my father in law is losing his fight with kidney cancer. The prognosis is grim; a matter of a couple of days at best. We're spending as much time as we possibly can with him...........
God, I HATE this disease!!!!!!!!!!!!!!!!!!!
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Wayne,
Sorry to hear that your FIL is losing the battle. it sure has been arough time for your family. I hope he isn't suffering.
Glad to hear that Stanley has the light in view. You are a good friend, for sure.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
| Forums23 Topics18,168 Posts196,925 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
