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#10719 05-23-2007 04:27 PM
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HAHAHA...Amy ,


I didnt need Dr Casana's observations to be not in the mood .. Even before my Diag and more KNowledge of HPV ..After working at Planned Parenthood and seeing just how much is out there ... was scary enough to keep me OUT OF THE MOOD ! LOL.. Truley is scary and the truth is the younger generation has NO FEAR and to beat that ,..they have NO SHAME.. we would see the same people over and over and over with the same or new STDS, they weren't ashamed or embarassed , they didnt care ..they werent pregnant and for alot of it they could take a dose of meication , but what about the things you cant cure or the HPV which causes the warts ? Better yet know we know 2 kinds of cancer ! I would love to go back and do more education for them .


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#10720 05-23-2007 05:42 PM
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Sad to say I dont think it would do much good. Ive been on a little mini crusade explaining this to alot of people lately, and at this point... I just get the "everything gives you cancer" response. The ones who smoke and drink are particularly tough to convince, since they already figure theyre at about the same amount of risk anyway.

Its amazing when you think about the fact that if a vaccine or proper education were in place, the number of new OC cases diagnosed could potentially drop by at least 9000 per year (25 percent).

Seems its probably too late for me, but even if people dont listen Ill keep telling them, or being an example.

#10721 05-24-2007 12:54 AM
Joined: Sep 2006
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The NEJOM acticle influenced by Dr Gillison concluded that there were at least 2 distinct pathways for developing oral cancer; one by tobacco and alcohol and one by HPV and they saw no association between the two. So if that's the case the comment that you got from the ones that smoke or drank would be totally false.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#10722 05-24-2007 03:47 AM
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David my friend you are preachin to the choir... I explain that. Problem is, it seems unless people see it drilled into through their eyes via public service announcement 15 times a day... they just dont seem to get it. aarrgh..

#10723 05-24-2007 10:55 AM
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Just trying to give u some ammo.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#10724 05-24-2007 11:03 AM
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I appreciate it, and I think part of the problem is right now its hard to convey to severity of the situation and not have my fear come through. In their eyes Im just babbling because Im scared of whats going on with myself. I literally carry a little LED flashlight in my pocket so I can look back there whenever there is a mirror handy.

I try to only allow myself to hang out on here and read through threads for a small amount of time per day, as it can be very overwhelming. I read about the young man my own age last night and his valiant battle and I was overcome with emotions. This is a very valuable resource and an extremely tight knit community of individuals here, which is why I made a little donation the other night, a price can not be placed on the kind of support and information provided by this site. I keep you all in my prayers and I hope for the same.

Back to my radio talk shows for now.. smile

ian.

#10725 05-24-2007 11:14 PM
Joined: Mar 2007
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Hello PD47

I awoke to my pain alarm. While waiting for meds to work I am surfing the OCF. I can't think and concentrate and its hard to read. But about your "crusade on cancer", I think we all jump into the fire running. But I learned that no matter what the situation is, in reality, the only person you can change is "you", period.

I heard a joke in AA that said: How many pschycologists does it take to change a lightbulb? Answer: One, but only if "IT" wants to change. Sounds stupid, but there is a reality of truth in it. And it rings "loud and clear" in AA.


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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