| | Joined: Oct 2009 Posts: 6 Member | OP  Member
Joined: Oct 2009 Posts: 6 | Greetings to all, I am relative new to this web service. For a few weeks I have been reviewing the comments posted here and I am impressed with the love and concern expressed by the subscribers of this service. I wish I had found this service some 2 years ago when I began my personal struggle with oral cancer. Today I am approaching, I hope, the end of aggressive treatments. The doctors cannot find any tumors, but have cautiously advised me that there are still a few cancer cells living within the tissues of my head and neck. At this time there is nothing left for them to do. They will periodically monitor my progress to stay abreast of my condition. As a result of my treatments my face is disfigured and I have been declared disabled. I receive a disability pittance from Social Security. It is just barely sufficient to cover my monthly expenses, but doesn't begin to pay for my medical expenses. I get a little help from church members and friends. I want to thank each of you and the creators of this web service for being here. However, I do have a question that some of you may be able to help me with. I have a G-tube for feeding (I think this might be called a "PEG".). I am running low on bags for ingesting a liquid food (Nestle's Nutrient 2.0) and have been unable to find a reliable source for replacements. I am employing a gravity feed system using Kangaroo bags (reorder no. 8884-773667). If you know of a source where I can buy more bags, please pass the information to me here or at my email address [email protected]. Again, thank you, Chuck
61 yr old male, Oral Cancer Patient, James Graham Brown Cancer Center & University of Louisville Hospital, Louisville, KY, USA. US Army Vietnam Veteran, Unemployed (Disabled), Dx 10/07 Head & Neck, Surgery 11/07 Mouth & Nose, Rad & Chemo 2008, Re-Rad 2009 Rt Jaw
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I use similar feeding bags with a Kangaroo feeding pump. I do overnight feedings. Mine come from Apria healthcare, 877 536-8372. Im in PA, I think they are located in MA. Hope this works for you. Welcome to OCF.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Welcome to out home CRT and I say this with all regrets. I wish it was just to stop by and say hi. You just got an answer from a lady that is knowledgeable about this garbage. I hope you can find what you need in the way of feeding bags. I'm sure I speak for all in here when I say ask all you want and we will do our best to make sure you get an answer. This place is better than home I would bet for most. We understand each other.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | Chuck,
I'm glad you found OCF. Have you checked eBay for the Kangaroo bags? I have seen them there for sale by people who no longer need them, and they might be cheaper.
Good luck to you.
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Oct 2009 Posts: 6 Member | | OP Member
Joined: Oct 2009 Posts: 6 | Thank you for the information. My wonderful wife will check it out as I cannot talk clearly. I have only ten teeth left on the lower front jaw. Again, thank you. - Chuck
61 yr old male, Oral Cancer Patient, James Graham Brown Cancer Center & University of Louisville Hospital, Louisville, KY, USA. US Army Vietnam Veteran, Unemployed (Disabled), Dx 10/07 Head & Neck, Surgery 11/07 Mouth & Nose, Rad & Chemo 2008, Re-Rad 2009 Rt Jaw
| | | | | Joined: Oct 2009 Posts: 6 Member | | OP Member
Joined: Oct 2009 Posts: 6 | Thank you. I should have thought of ebay, but I guess I'm too close to the problem to think clearly. My wonderful wife is good at ebay searches. She will check it out for me. - Chuck
61 yr old male, Oral Cancer Patient, James Graham Brown Cancer Center & University of Louisville Hospital, Louisville, KY, USA. US Army Vietnam Veteran, Unemployed (Disabled), Dx 10/07 Head & Neck, Surgery 11/07 Mouth & Nose, Rad & Chemo 2008, Re-Rad 2009 Rt Jaw
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