| Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2006 Posts: 199 | So, it's interesting to read this and relate to some of my symptoms, even though I did not have RT, only a neck dissection. My neck, especially on the left side (where the dissection was done) feels very stiff and aches at times, although I try to do my stretching exercises regularly, In addition, I get the worst cramps under my chin especially when I've done a lot of physical exercise or am tired. And occasionally, I get a very weird shooting pain up the back of my head - not as often but I sure know it when it happens! I put it all down to both scar tissue and nerve damage from the ND... Have asked my docs about it but they have no other suggestions to help besides what I'm already doing. But I agree, it's a small price to pay if I remaing healthy and cancer free!
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | That would make sense, particularly if you had a pectoral flap since it is used mainly for bulking up the area and adds no useful function. Nerve damage can also cause muscle malfunction.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Aug 2009 Posts: 1 Member | Member Joined: Aug 2009 Posts: 1 | I get a regular neck cramp, sometimes several a day but at least 5 or more a week. I also get a tingling that runs down one or both of my arms. Physical Therapy helped my range of motion and strength but hasn't ended these cramps. They are painful and normally only stop when I lay down and take all pressure off my neck. They sometimes come in the front of my neck but also in the back. I have had both sides of my neck dissected and radiation to both sides. I have a massage or two a month to help which does help. I am thinking of starting Yoga to see if that helps.
If anyone has any idea of how to stop these cramps I am all ears.
4 time cancer survivor, PET clean as of May 2009, first Dx 2005 at age 44, 6 surgeries ND to remove lymph nodes / tonsil / palate / nasopharnx / reconstruction, 3 rounds of radiation IMRT, 2 of Chemo (Cisplatin then Erbitux), 3 of PT
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Chuck,
You had 3 separate rounds of IMRT? Same areas? That's a first around this site!!
Congrats on beating this crap 4 times.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Wow 3x IMRT !
Not sure if this is relevant I get neck cramps (under the chin once in a while). These generally pass quickly and seem to some extent tied to cold(er) temperatures. Well if you can call Atlanta cold....
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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