| | Joined: Jul 2009 Posts: 2 Member | OP  Member
Joined: Jul 2009 Posts: 2 | I just found out last night that my mom has stage 2 oral cancer. I am feeling very overwhelmed and scared right now and quite helpless. I don't have many specifics about the cancer just yet but was looking to find out if anyone has any lists of what she can eat after her surgery. I was told all soft foods such as pudding, shakes, smoothies etc. Were not sure what to expect but trying to plan ahead to help her as much as we can. | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Not sure what surgery you are talking about?
How was her cancer diagnosed?
Where is she being treated?
Is this her only opinion?
Try and find out more about the name and location of her cancer. The more we know the better our responses can be.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Your question is a good one, but as David said, we need to have much more information to answer this question and the many more you will certainly have.
There are many different types of treatment for oral cancer, including surgery and many answers to go with those types. As you get more information and the answers to David's questions, there will be someone here to help you.
Being overwhelmed is normal. We have all felt that way, too.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. Im glad you have found this site. It will give you so much info and help. Here is a list I made up a while ago of easy foods: http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=94621#Post94621
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I have had 4 surgeries for my cancer. Of course I don't know what surgery your mother is having. I have had 4 partial glossectomire (removal of part of the tongue) I "ate" Ensure. That was about it so at the least you can buy that for her. Just be ready b/c she will be in pain. It hurts to swallow your own spit. Eventually I was able to get down some mac and cheese but I had to take pain medicine and swish with viscous lidocaine before I could do that. But, it was worth it. Hopefully you can provide us with more information so we can help you more.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jul 2009 Posts: 2 Member | | OP Member
Joined: Jul 2009 Posts: 2 | Thank you to everyone for all your wishes and concerns. I am hoping we will find out more today. We will be calling her doctor (ourselves) to get more information. The information I gave you is all the information I received. I think sometimes if you don't know - then maybe it isn't real (in my mom's eyes) My mom told us only that she needed part of her tongue removed and part of the gum line. This is a stage 2 cancer but she has no idea what type of cancer other than oral! Will post the information later today. From what she told me the doctor gave her a good prognosis. She goes for PET scan between now and August 11th to see if the cancer has spread to any other areas in the body. I hope to know more today! | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Were you with your mother when the Dr told her she has OC? If not, I am sure he would be glad to talk to a family member and fill them in on what has to be done.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2008 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2008 Posts: 49 | Hi and welcome! Be advised that they will be loading you up with so much information, your head will be spinning. Take good notes, read them over and then, proceed with instructions as needed. Everyone is different. Not everything they tell you necessarily has to be the case.
Find out the primary (where it started) and their recommended course of treatment. Go to a Comprehensive Cancer Center. Get a second opinion.
You are in our prayers!
Donna
Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
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