Today John is "officially" half way through treatments. Friday was his 4th chemo. He is hanging tough but things are pretty rough. He is taking Zofran for the nausea but it doesn't seem to be doing a lot to relieve it. I put in a call to the Oncologist for maybe something stronger. He has lost 10 lbs. and should be using the feeding tube more than he does. He hasn't had to take any pain meds yet. The mucus is getting to be a big problem. He is very nauseas and tired. He saw the RO last Thursday. He put the scope up his nose and down into his throat. He said he looks like he would expect him to look at this point. He said from what he can see the tumor "appears" to be shrinking a little.

My question is - what happens when treatment stops? I guess I have been a little in denial but I haven't considered that the treatment wouldn't get rid of the tumor. Wanda


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2