If you were not afraid, I would suggest that you were lying or abnormal in some other way. Appropriate emotions, no matter how negative, are best recognized and not rationalized. If this gets out of hand, do not be such a "tough guy" that you avoid taking clonazapam or something else to relieve anxiety. The Stones were right when they were referring to "mothers little helpers" - they are appropriate to keep things in perspective.

Each hospital has a clinical trial investigator/searcher. Make sure that you are using that person to the fullest extent. Also though far more time consuming, there is a clinical trial search engine on the other resources page of the OCF web site.

While your friends are not bringing you THE answer, revel in the fact that this many people give a &*# about what is happening to you. The other side of that coin is their best intentions can, after awhile, be a bit irritating. Americans know so little in general about cancer and the issues that go along with it. But they care ... and that matters.

Start them looking at the possibilities of monoclonal antibodies that have shown success in lung cancer. Yes, you have that and something else.... but any port in a storm that buys time. Irrissa might be a starting point. A commercial failure since it only worked in 10% of the people that used it, but in that 10% it worked 100% of the time. They are finding that with these kinds of targeted drugs, that genetic testing guides then to the people that have the genetic make up similarities of the others it worked in. They are now mapping those markers to do that testing first, and then decide if the drug will work for you before administration. One of the good things about monoclonal AB's and other targeted therapies is the side effects are minimal.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.