Hello, I am new to this and hope I am doing it correctly. I have had 2 biopsies since Oct. of last year. The second one confirmed proliferative verrucous leukoplakia with moderate epithelial dysplasia - what a mouthful!!
I am just coming to terms with this diagnosis and would like to find someone to talk to who has gone down this road or is in the midst of treatment. I am getting a second opinion tomorrow morning but would still like to hear from someone who is actually experiencing this rare disease.