Denise,
you raise very good questions. I will do my best to answer them so they make sense.
First off, cancer staging and diagnosis is a complicated thing and oftentimes it can't be correctly staged until either a biopsy or resection and subsequent pathological exam of the tissues is performed. Typically what they mean by "clear margins" is that they have a centimeter, at least, of clear, cancer free tissue. Tumors have tentacles, much like an octopus, so it is vital to have clean margins. 3 weeks does seem like a long time to get a pathology report and a consult from the doctor, but consider that most of us, even fast tracked, took 4-6 weeks from Dx to start of Tx. See this link for the difficulties and complexities of this particular and rare form of cancer:

http://www.oralcancerfoundation.org/facts/rare/mc/index.htm

Here is another link further demonstrating the complexities of MEC:

http://www.thedoctorsdoctor.com/Diseases/mucoepidermoid_ca.htm

Lymph nodes: They are fairly straight forward to palpate - if they are cancerous they will be enlarged, firm and typically have an almond shape to them.

Pet Scan issue: A PET scan at this point would present many false positives due to the healing going on.

You are fortunate to be at MSK with such a rare form of cancer. They are the highest rated Comprehensive Cancer Center in the US and probably the world.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)