Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi, Welcome to the forum and sorry you are having all these difficulties.
I had XRT in 1997 and am not having those problems at this point although the total laryngetcomy in 2001 solved most of the choking on food issues. The swallowing issues I had after radiation involved choking on certain foods. I found that if I avoided the ones that I knew were problems, most of the rest would go down. Everything had to be cut in tiny pieces and I was only able to eat foods in lots of gravy or sauce or very rare steak or lamb chops. Anything dry was a no no. Also drank a lot of liquid with meals. Things gradually improved over the first couple of years. I certainly never regressed as you have.
I have never had problems breathing. Are you certain that this is not COPD? Were you a smoker? Have you had a CT of the chest or bronchoscopy? What does the lung dr say is causing the breathing difficulty. Hopefully this is not something else I get to look forward to.
Take care, Eileen P.S. I think they still use XRT on unknown primaries and a few others where they is no eal target.
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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