Jim,

Our RO at our CCC is strongly opposed to scans, our ENT says he will order them if we want them and our Chemo oncologist demands them every four months.

The last scans were done last November after 4 months from end of treatments as ordered by the chemo doctor. We got all kinds of bad news following the scans during an hospital stay from attending doctors regarding recurring tumors in the tongue and neck. We were devastated.

Then we went to see our ENT. He tolds usa that the scans were normal. A few days later went to go see our RO and he was furious that the scans had been done. He basically said the the scan report was not worth the paper was written on it and that he had looked at the scans and there were no tumors.

The RO continued to say that scan reports which are written by radiologists tend to be pessimistic because of liability reasons and than it is left to them (RO's) to explain the scan reports.

In our case the RO called the radiologist that had written the report and requested that the report be amended.

We saw our Chemo doctor last week and this doctor wants more scans done. We feel we are in a trap.


CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations