Hi --

Chuck is right that the exercises have to be prescribed for each specific person's condition, which will be determined after a swallowing evaluation (fluoroscopic exam where person being tested is usually asked to swallow -- or try to swallow! - a thin liquid, a thick liquid, a puree, and a solid (like a cracker) -- all containing barium -- and will probably also be asked to speak and make certain sounds. The doc will then look at the images (still and moving) and make a diagnosis as to amount of impairment, if any. The therapist will then develop exercises to strengthen weak areas etc. Barry's involve suction and lingual (tongue) exercises and also, certain swallowing exercises.

While Barry got his exam at Hopkins, both our local hospitals also have speech/swallowing therapists and perform swallowing exams (per our ENT who is in private practise at these hospitals).

One word to the wise -- everyone has emphasized how important it is to do this as soon as is possible after treatment BUT not until there is enough healing and reduction of inflammation so that a reasonable exam can be made.

And also, that these exercises may have to be performed indefinately as scarring and fibrosis can show up months or even years after end of treatment -- "creep up on you" is what our ENT said.

Gail


CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!