Hey Alan,

I was planning on wandering over your way to see how things are going. I have been looking for work, pushing for social security and looking for work.

I notice so many aches and pains in the fingers, elbows, wrists, knees, ankles, etc. at different times and wonder if it is from the radiation or chemo. I even had the radiation folks blaming some of the neurological issues on the chemo and the medical oncologist blaming it on radiation. I don't care whose fault it is but I wish there were things to do to make some of the little things like joint pain, headaches, eye aches and stuff just go away. I guess it will probably be around for a while...if not forever.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023