My husband and I are very happy with the care that he has received at MDACC, Orlando branch-with the exception of the placing of the peg tube. It was placed by the interventional radiology group instead of the gastro group. (due to the urgency of the matter). We were not told how to care for the tube. Do we use anything to clear it other than water?? Someone mentioned club soda. How long do they stay clean?? I wash all removable parts with soap and water. Also we need a replacement part for the female receptor which screws on to receive the gravity bag. I called the manufacturer and they advise that I have to buy the entire peg tube to get one. I think these parts are interchangable with other types of peg tubes. If anyone knows where to buy this part, please let me know.
Thanks again
Meredith