 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lisa,
I was not my caregiver so I really can't identify that closely with your part of the Tx but unfortunatley you are just as much as an unwilling participant as Bill is. The BIG difference is that you can walk away anythime and he can't. He has his plate full and it's probably going to get a whole lot worse for the both of you before he walks out of that dark tunnel around the end of April.
What you are experiencing is NORMAL. There are not too many saints walking around these days that can handle what is thrown at the patient and caregiver. Try talking to a mental health pro, that may help. Try letting Bill know how you are being affected. I remember how devastated I was when I found out that my wife would cry in private rather than upset me. I wasn't making her mad but she was just overcome with the whole C thing. Nevertheless I would have wanted her to share that with me because she was just as much a part of my Tx as I was.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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