Hi David,

Welcome to the neighborhood! I am sorry to see you have had to battle the beast again, even though it was quite a long time between bouts. I wish I had better news to tell you but unfortunately, you have a bit of time ahead of you before you will be feeling close to where you started. I just passed my one year post treatment anniversary and Saturday I had my first dinner completely without water until after I ate. It was just a few weeks ago I was able to gulp water and I was pretty excited about that. I was tempted to reach for the water but through intense concentration, I downed the 16 oz ribeye, the asparagus and shiitake mushrooms and the corn! I wanted to go running down the street kind of like Steve Martin in the Jerk when he saw his name in the phone book! eek

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023